Tonight I am really struggling.
I have a scan on wed morning I've been waiting for for 6 weeks. (Not so long) The last 2 scans were awful, and the cancer markers have shot up, but my Consultant thinks it could all be down to what he described as raging pneumonia and pleurisy in July.
I don't want to do this. I don't want to have another scan, the last one ended in tears because no one could get a vein, and then have the build up to the results and then be given the benefit of the doubt, which felt like winning the lottery 3 months ago but now just feels like being in limbo. And then do it all again next month in Leeds for the brain MRI.
There's been a major change in how I am this year, and as others have said, it's another step down the road. I've been following all the posts and know that many of us are having a far more challenging time.
But I'm so sad, and so tearful tonight.
Tomorrow I will be brave, lippy on and a big smile. xx
Oh Tvman, that does sound like a nightmare. So glad you finally got to give your daughter her special daddy cuddle. I nearly deleted this thread straight away because I was thinking about you and your daughter, but decided you would want to hear good news too, so thank you for those lovely words.
Your grandson sounds like a ray of sunshine, that's a great age, and it must feel amazing that he's so excited to see you. Have a lovely week together, lots of love xx
Hi Millie
You have summed it up in a nutshell. Everything is fine and dandy now. Road blocks and delays are history.
Right now, my grandson and I are watching Toy Story 4, sharing a tub of popcorn.. He's leaning against me cuddling up, sometimes he's sitting on the floor cuddling up to my legs.
At 5.45 this morning I was woken up by banging. It was Harry opening and closing the door and then in he burst, zombie-like, and climbed into bed with us and snuggled up to me.
So Millie, I can safely say that I'm warm and well fed. Not sure about the energetic part after 2 or 3 hours of playing with cars and spaceships!
Thank you for your concern and I hope you're doing as well as can be expected.
Tvman xx
Hi Tinalay
I'm glad you didn't delete, otherwise I wouldn't have read your delightful post.
Wee Harry thinks all his Christmases and birthdays have come at once. He's so happy he has hardly stopped running and jumping.
My daughter is keeping well, it was a sad time for her and her husband. They seem fine, but my wife and I were in the same unfortunate position many years ago and we know the hurt that they're going through.
You're right Tinalay, it's good to hear good news, thank you so much. Take care.
Tvman xx
Hi ,
I'm busy loosing track of my own diary but I think that it is today that you are due to get your CT scan results. Am thinking positive thoughts and wishing you al the best.
Love Gragon xx
With so much going on Gragon it's no wonder. Yes, seeing the big man this afternoon and feeling positive and supported by the good wishes and positive vibes coming my way.
Looking forward to seeing you in 2 weeks for a proper catch up and a hug. I've come across some posts that I'd missed this morning and there are some I wanted to reply to but can't find, lack of sleep partly to blame.
Thank you m'dear. Lots of love. Xx
So, not what I was expecting. The scan hasn’t been reported, disappointing as the Consultant expected the scan and results to be ready for the last appointment 4 weeks ago. The cancer markers have gone up, but have fluctuated since a big spike in August so not helpful atm, it seems the severity of the pneumonia is still complicating things. Still here though yay me! Benefit of the doubt, again.
The good news is I’ve just booked a week in Lanzarote before a brain scan in Leeds and flurry of hospital
appointments
Also there is a plan B, which they will start sooner rather than later, more IV chemo.
It’s not over till the fat lady sings. xx
1st off.... Pffffffffffft!
2ndly..... I'm clearing my throat now ready to belt out a tune, so this can all be over with a positive outcome for you!
Lass
Xx
I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.
Hi
That’s discombobulating. At times like these I go back to the wise words of one of my oncologist’a clinical fellows. The most important thing is how you feel. Next comes the scan and the markers a long way behind that.
I hope that booking a holiday is an indication that you feel well. I know IV chemo is no picnic but I hope it feels reassuring to have a plan b. When do you start? More important, how soon is that holiday?
Love and hugs xxx
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