Struggling

FormerMember
FormerMember
  • 65 replies
  • 45 subscribers
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Tonight I am really struggling.

I have a scan on wed morning I've been waiting for for 6 weeks. (Not so long) The last 2 scans were awful, and the cancer markers have shot up, but my Consultant thinks it could all be down to what he described as raging pneumonia and pleurisy in July. 

I don't want to do this. I don't want to have another scan, the last one ended in tears because no one could get a vein, and then have the build up to the results and then be given the benefit of the doubt, which felt like winning the lottery 3 months ago but now  just feels like being in limbo. And then do it all again next month in Leeds for the brain MRI.

There's been a major change in how I am this year, and as others have said, it's another step down the road. I've been following all the posts and know that many of us are having a far more challenging time.

But I'm so sad, and so tearful tonight.

Tomorrow I will be brave, lippy on and a big smile. xx

  • FormerMember
    FormerMember in reply to FormerMember

    That is one gorgeous baby. 

  • FormerMember
    FormerMember in reply to anndanv

    Hi Annette, haha very true! My niece is getting married, Lily's mum, she and her partner also have a son Max who will be 4 on Boxing Day. We're delighted for them all. They live in Tyne and Wear, but are getting  married in York to give my BIL who has has Lewy Body Dementia the best chance of being part of the wedding. This is the first wedding in their generation so there's great excitement, and maybe some of the others who are in long term stable relationships will be prompted to follow suit ;)

    It's important to have things to look forward to and family events like this definitely top the list!   xx

  • FormerMember
    FormerMember in reply to FormerMember

    How incredibly cute! X

  • FormerMember
    FormerMember in reply to FormerMember

    I need a “love” button as like just doesn’t cover it. Such a cute baby. I am so happy for you 

    xx

  • FormerMember
    FormerMember in reply to FormerMember

    So cute. I love those chubby cheeks.

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks for all the lovely comments, that photo just melts my heart.

    Daloni I was going to ask for technical advice because most of the time I don’t have a ‘like’ button, but every now and again like this morning it appears...? It doesn’t seem to matter what device I’m using, one of life’s little mysteries. xx

  • Heya, 

    You'll only have a like button when you are logged into your account. So if you don't see a like button, check the top right of the screen to check you can see your avatar, messages icon, and username. The site randomly likes to log you out of your account sometimes, so your like button will come and go because of it.

    Lass

    Xx

    I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.

  • Hi Tinalay

    What s beautiful little girl with cute wee podgy cheeks and you have lived to see her first birthday Slight smile.

    When I was diagnosed, my daughter wasn't even pregnant, now little Harry is 3½ years old. 2 years ago I was in M&S one day and a little girl about 3 years old ran excitedly to the lift and pressed the button. Just then I broke down thinking I would never see Harry do that. Now, I'm trying to get some sleep after being woken up at 7 this morning by Harry bursting into the bedroom shouting "Grandad, Granny". He's a lovely happy wee boy.

    And Tinalay, you will have lots more happy birthdays with little Lily. 

    Sorry I missed this thread yesterday, probably because I was having a nightmare journey to get to my daughter's. Firstly the flight was delayed, then the first train from Birmingham Airport was delayed then the second train to Stamford Lincs was delayed. We had to wait in a car park in Stamford to get picked up and between my wife and my daughter, there was a mixup and we were waiting at different car parks! Next, just a few miles outside Stamford we sat at a level crossing for 20 minutes without moving! There was a signalling fault nearby and two trains were stuck because of that so we had to turn around and go a different way, over a different level crossing some 5 miles away.

    I was tired, cold and hungry when we reached her house but felt much better after giving my daughter a huge hug.

    Speak soon

    Tvman xx

    Love life and family.
  • FormerMember
    FormerMember in reply to tvman

    So glad you got there, Tvman. That hug was important to both of you. I hope you can all begin to heal a little, now you are together.

  • FormerMember
    FormerMember in reply to Lass

    Thanks Lass, that worked! Busy liking comments Smile xx