Update

Hi Phil, was wondering how you got on. Hope the antibiotics and steroids make you feel better this week. X 

Liking Phil,s post doesn't seem right does it

To add to the Sutton story.  I thought Phil had been extraordinarily unlucky

In one week I had two appointments, two blood tests, one ECG 

Signed up for a trial assuming samples met the criteria 

Samples sent off, results in about four weeks

Except they weren't sent off

Only my phone call chasing the results led them to realise this

So having wasted five weeks I am now in limbo again for a further six weeks

Aghhhhhhhhh

Hi Phil, 

Can an infection be considered good news?

Maybe just a setback at the moment and they are going ahead with the RT so something is happening. 

Dose yourself up with the antibiotics and steroids and get out on that golf course!

Wishing you all the best 

Albondigas x 

Hi Skaila 

I cringe with my husband's impatience and aggressive behaviour but he has saved me multiple times from the twilight zone !  Being a good patient doesn't always pay. 

Wishing you all the best 

Albondigas x 

Oh SKAILA, I was so sorry to read they hadn't sent your bloods off! So did you find out what they did do with them? I assume they've taken fresh bloods now and you can phone next week, just to check! It's a long time when you are waiting for results, whether it's 1 week or 4 weeks! I hope they marked them urgent! Xxx

Hi Phil, Well at least they know what's wrong. An infection can be quite nasty but yes Skaila it is good news because they can sort it out with antibiotics and things could have been a lot worse. I know I'm usually relieved when they tell me I have an infection because my imagination thinks it's a lot worse than that! I do hope the combination of antibiotics & steroids sort you out quickly and your RT goes well! Did the Marsden not have any suggestions for you? Good luck, I've got everything crossed for you! Love Annette xxx

Hi

Hurray! I really hope you’ll start to feel better soon with the antibiotics and steroids. Thank goodness for Brighton. It sounds like they treat you as a whole person rather than trial fodder. 

And - that’s a shocker. What the actual? Not much I can say really except big hugs and where’s the grrrr button when you need it? 

Xxx

Oh dear, I shouldn’t get on the computer late at night after two glasses of wine

I meant the first line to go on this page and the rest to go on Phil’s “this post carried a government health warning” 

Sorry to have butted in on your update Phil – will head back to the lung cancer thread …

Well I've just had my treatment cancelled for today but no one told me. I had to chase and ask why there was no nurse and no drugs. I've had two different stories about the mistake made so someone is lying. I can't believe how upset I am - just burst into tears when she said I'd have to wait another week as if it's like delivering my weekly food shop. Surprised by how upset I am although I suppose I am relying on it to keep me going...

Shoddy practise all over the pace hey? Maybe it's just me and Phil (and Button16) on the end of it!

Hope you're all experiencing better service than me today.

x 

Do you think the docs realise that it is literally our lives?  I'm sorry so many of us this wek have had crappy treatment which can be frustrating and annoying and upsetting. Lets hope they sort it put 

X