I was diagnosed with Hodgkin lymphoma at 16, and relapsed not long after my first line treatment and had to undergo a stem cell transplant. I am now 4 years in remission and 23 now. I’m not sure why but recently I have felt the impact more of what I went through years later. It makes me feel isolated as my friends obviously don’t really understand what I went through. Any advice would be great, especially if there is anyone else who went through treatment at a young age.
Hi Pb26 and i see it’s your first post so very warm welcome to the Macmillan Community
I am Mike and I help out around our Lymphoma groups.
I don’t have Hodgkin's Lymphoma but I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL (a type of slow growing Low-grade non-Hodgkin lymphoma)……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell NHL (a type of fast growing High-grade non-Hodgkin lymphoma) was then presenting so although my Lymphoma ‘type’ my be different I most definitely appreciate the challenges of this journey rather well……. especially as I have had 2 Allograft (donor) Stem Cell Transplants (SCT) back in June 2014 then Oct 2015.
I was also diagnosed with Asbestosis in 2012 and Prostate Cancer this April past.
I have been volunteering on this community for over 9 years both on our dedicated Hodgkin's Lymphoma group as well as our Stem Cell Transplant group and I have no recollection of anyone who were so young when having their SCT.
As you know the SCT process is a significant event and for some it can take years to outwork what went down.
I had some post SCT baggage so I had a few one on one times with a support worker at our local Maggie's Centre.
If you are in the UK you may want to check out…… Lymphoma Action the UKs main Lymphoma charity.
The Lymphoma Action website has lots of good reliable information, videos..... basically all things Lymphoma....... pre, during and post treatment.
All the links I use are taken directly from their website and I have volunteered with them about as long as I have with Macmillan……
You may want to widen your support and information base by checking them out as I am sure that there are a few folks in our Closed FB group (that has over 6600 members and unfortunately you would most likely bump into me on there also)……. who have walked the same path as you
Check this link for their Support Platforms…
I highly recommend these groups as this will widen your support base and there is nothing better than ‘talking’ with others who have walked or are walking the same journey……
They also run the very good Lymphoma Focused Live your Life Course that is a peer-led self-management course.
Always around to chat and help out as best as I can.
If you do want to join the Lymphoma Action FB Group remember to answer all the joining questions 
