My experiences of a stoma reversal

  • 12 replies
  • 34 subscribers
  • 1210 views

Hi all

In Oct 24, I was diagnosed with a low bowel/rectum cancerous tumour and in Dec 24 I had a 10 hour operation to remove it, accompanied by an ileostomy and stoma.

I got on ok with the stoma bag; but I always hoped I'd have a go at REVERSAL as it is, surely, the gold standard to aim for? 

fast forward to late October this year and I get a slot for the reversal operation -October 27th Grinning

Operation goes well, the stoma site is stitched up and my large intestine-or what's left of it- is asked once more to join in with the alimentary canal! I can almost see a dark tunnel, full of spiders and webs and dust, unused for nearly a year creaking back into life....

It's been tough, won't lie. I had almost no appetite for 4 days and what came out of my bottom doesn't bear describing -'emaciated alien' is one description-...my sleep has been awful , I've felt nauseous often. But today, 1 week later, I feel green shoots of recovery. My tummy is not quite as tight as a drum and I fancy food!

I've acquired a few tricks and tips to date so if my experiences can in any way help anyone who might be about to undergo a reversal, or be thinking of having one, then please allow me to help! x

  • I really needed to read that, thank you! I'm sitting in hospital right now, three days after my reversal. I've spewed liquid out my back end 14 times in the last 24 hours and even though I'm only five paces from a toilet, I haven't quite managed to make it every time before losing control. I know this is what I have to expect initially and that it will get better with time, but I'm definitely 'having a moment' right now! It's inspiring to read what you said about your progress. Thank you!

  • Hi  and congrats to you on getting this done!!! Yes, those first few days and weeks are a challenge-but you know what, things get better and better . I am now about 6 months post reversal and I visit the loo 3 to 5 times a day-I know things will never be like they were before . But everything is MANAGEABLE , if I need to go I can hold onto the need for a while, I don't get woken up in the night to go and poo urgently ..it's al good Heart eyes

    You will curse andd cry a bit as these days get ticked off , but like me you'll look back soon and think 'Wow!!! So glad I had that done!'` Grinning