Absolutely terrified

Thanks. It seems as if new issues keep cropping up.  I saw my consultant yesterday and what I would have is removal of my vagina, bowel, right lymph nodes and a wider excision on a melanoma on my back. But it was the possibility of lymphodoema and not being able to walk that is scary. I'm doing this to outlive my dog and if I can't walk, it seems pointless. 

Hi Beniciam,I had bladder cancer and had a life saving urostomy.After over 30 years of chronic bladder disease before cancer life is much better for me with a stoma.The stoma nurses instruct you and you soon gain confidence in your own stoma care.It becomes routine.It’s only natural to feel scared but once you know what you are doing it’s really not that hard.I’m sure you will adapt.As the others have said you can still live a full and active life.My late aunt had bowel cancer and had a stoma.She was horrified and swore she would never get used to it.Once she recovered from surgery she soon adapted and was off travelling as she had been before her cancer diagnosis.She was able to go abroad and on public transport with no problems.Best wishes Jane 

Hi Beniciam

I’m sorry you’ve found you need additional surgery-that’s always a blow.  I’ve had a total pelvic exenteration, which included lymphnode removal along with my vagina, bladder and rectum, among other things, but I don’t have lymphodoema. Have you been told there is a high chance of that? I do have friends who have lymphodoema, but they manage it and live active lives. 

Sarah xx

Thanks Sarah. The lymphodoema was part of a lengthy discussion with the consultant. I've already had left lymph nodes removed four weeks ago with no problems but I don't know if this is a good sign or bad because it will be both sides?!

Catherine 

Chromplated

I am really pleased to hear that you’re managing your stoma and having a better quality of life. Weathers improving and you’ll be able to travel more 

Take care