New to the group

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Hi everyone I’m new to this group previously member  in Bowel cancer group.

i know I will be looking for support in coming days weeks months.....maybe year 

bit of background 

it’s my hubby with cancer, he had rectal cancer, had five weeks chemo radiotherapy got complete response had about 7 months clear then found some abnormal cells, not cancer but could become. His surgeon said maybe best to have surgery remove area temp stoma, it’s was rushed in before covid virus became too high.  Meant to be in hospital 6/7 days

things went wrong he has been in hospital now nearly five weeks, originally had colostomy, then ruptured Bowel emergency second operation, sepsis and critical in ICU and I have not seen him for weeks. So many things happened. 

i have been told now has illiosomy.  He is now starting to get a little better and hopefully home soon, however with virus rife in hospital I can’t go in to be shown how to do bag etc and I desperately want him home..... so as I said I will be looking online for help and advice..re managing bag, diet meds ..he has post operative dilerium and confusion so can’t take in yet what they are doing with stoma,  the physio people wanted him to go to care home before home but I’m not having that just  want him here,

it’s going to be tough I know, but I also know great help on forum too, so as I said just checking in for now but hopefully he will be home next few days, but stoma nurse doesn’t work weekends.

no doubt you will hear from me again soon xx

  • Hi I'm so pleased he's home with you , I'm allergic to buscopan so cannot answer that one  I think it's for stomach cramps though so only take when you need to , the loparamide I was given but only told to take it if my out put was really loose my surgeon  did tell me to try not to take it all the time but all the surgeons have different ideas. 

    I really wouldn't worry about him not eating too much I ate hardly anything for weeks and have only started on the ensure 2 months ago , I still don't eat that much to be honest and too have lost a lot of weight. I would just let him eat what he fancies as long as it's illostomy friendly . Just try and keep him hydrated. 

    I also put my alarm on twice at night to double check wether the bag is full this is when my bag seems to blow up like a balloon still does ,so I always check a couple of times

    I can't think of anything else at the moment but will not it down if I think of anything

    Lots of love

    Peacock62 xxx 

  • FormerMember
    FormerMember in reply to process

    Hi

    I'm really pleased that hubby's back home where you can look after and take care of him

    It must have been a real cack handed nurse to get the pouch on wrong, put that behind you you'll soon get into a routine. One thing I should have mentioned about doing a change is being organised. I have everything I need for the next change all prepared and placed in the disposable bag, then when I need them everything is there, I take everything out of the bag and lay it out in the order I will use it disposing of all waste as I go when I am finished all I have left is my waste bag and any other products that go into the next bag.

    As you are helping hubby to change it should be relatively easy to do as you have the advantage of seeing where the pouch is going.

    Before you apply you will be able to see if the hole is the correct size and be able to adjust the angle before you attach.

    Attaching, after taking off the backing paper fold the wafer in half to form an arc, starting at base of the stoma get the wafer as close to it as possible and slowly bring the sides up to the centre of the stoma making sure that again you get the wafer as close as possible to the stoma sides, smooth over the wafer to remove any creases and putting slight pressure around the stoma to start the adhesion now finish off by bring up the rest of the wafer up to the top and smooth down to remove any creases, rub a finger all the way round the wafer to ensure that the outer edges have adhered. The next part either your husband can do or you could do it, place both hands on the pouch and press down on the pouch and wafer for 25 - 30 seconds to finish off the adhesion. A hair dryer on a low setting can be used for a few seconds can also be used.

    Clear away waste by placing the disposable bag in the household waste and prepare the bag ready for the next change.

    Eating

    It is very normal to not want to eat, mainly not because hubby doesn't want to eat but he may find food has no taste and is very bland. 

    Don't worry.

    Start a food diary and record everything he eats.

    Ensure drinks are not everyone's cup of tea especially the milkshake or the yogurt type, it might be worth looking at the juice ones. I always found that to drink a full bottle was too much and used to sip throughout the day.

    Only prepare very small portioned meals and they happen just to be a banana, a jelly, ice cream and he can eat them 6 times a day he will be getting some nourishment, even cup a soups have nourishment, his appetite will come back. I will send you a food sheet showing you the effects foods have on bodies.

    Just go with the flow and let him eat as and when he wants to.

    Medication

    Follows some notes on the use of Buscopan and Lopermide.

    Buscopan comes on prescription and as 2 different products (Buscopan IBS Relief and Buscopan Cramps) that you can buy from a pharmacy or shop.

    Only take Buscopan IBS Relief if a doctor has confirmed that you have IBS

    Buscopan relieves the pain of stomach cramps by helping your gut to relax.

    The medicine works very quickly. Painful cramps should ease within 15 minutes.

    The usual dose of Buscopan for stomach cramps (or cramping pain) in adults and children aged 12 years and over is 2 tablets taken 4 times a day.

    The usual dose of Buscopan for symptoms of IBS diagnosed by a doctor in adults and children aged 12 years and over is 1 tablet taken 3 times a day.

    You can increase this to 2 tablets taken 4 times a day if needed.

    Loperamide is a medicine to treat diarrhoea (runny poo). It can help with short term diarrhoea or irritable bowel syndrome (IBS).

    Loperamide is also used for longer lasting diarrhoea from bowel problems such as Crohn's disease, ulcerative colitis and short bowel syndrome. If you have a colostomy to give you a stoma (an opening in your stomach to collect poo from your body), loperamide can help to slow down your bowel and make your poo thicker.

    Loperamide is available on prescription. You can also buy it from pharmacies and supermarkets.

    It comes as tablets, capsules and a liquid. You can also get tablets which melt in your mouth. The liquid is only available on prescription.

    Adults (over 18 years old), including adults with IBS

    The usual dose is:

    capsules or tablets: take 2 capsules or tablets straight away. Then take 1 capsule or tablet after each runny poo.

    liquid: take 4 spoonfuls (5ml each) straight away. Then take 2 spoonfuls after each runny poo.

    Stop taking loperamide as soon as your symptoms settle down.

    The recommended maximum daily dose is:

    Note there is a difference in dosage between being prescribed by your GP and buying over the counter 

    6 capsules or tablets in 24 hours if you bought them from a shop

    Do not take loperamide for more than 48 hours without talking to a doctor.

    8 capsules or tablets or 16 spoonfuls of liquid (5ml each) in 24 hours if you bought them from a pharmacy or your doctor prescribed loperamide

    I hope the above is of some help if anything needs clarification or I can be of any further help please dont hesitate to contact me at anytime, and I do mean anytime.

    Speak soon.

    Ian

    CC