New and scared

FormerMember
FormerMember
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I was referred because I had a small lump in my anus back in June. I then had a CT and MRI scan and then a colonoscopy which was abandoned due to pain from an unknown abscess.  I was told I had a fistula and then forgotten about. Over the next few months the lump grew until it was protruding and reduced the size of my anus making passing a motion difficult and it leaked mucus and stuff.  It wasn’t until the end of November I was sent for a biopsy and was told that day it was cancer and I would need a stoma and radiotherapy.  I thought it was cancer but it t the operation for the stoma that is really getting to me. My anxiety is through the roof and I can’t relax or sleep properly, am eating very little and have lost 4 stone. I’m so scared and stressed right now.  How did any of you cope ? I’m a big wuss, a bad patient and have a low pain threshold. I can’t see a point to it all right now

  • Hi Martin,Like Wellspring I had 2 stoma teams and both were very helpful.The thought of a stoma is daunting but the stoma nurses explain everything so well and will support you especially after the surgery.I was a few days post op and the stoma nurse had forgotten to tell me that a stoma nurse from another team would see me at the weekend.I changed my bag for the first time unaided and then this stoma nurse turned up and said she had come to see me change the bag.She was suprised when I said I had already done it and came back the following day to check I was managing.Best wishes.Jane