Stinging Stoma

Hi Ian,

Thank you for your reply.

I am sorry if I sound huffy but this constipation business is getting on my nerves. I hope I didn't upset you.

I have just rang the hospital and spoke to a senior stoma nurse. I explained about the xray on Wednesday and the A&E consultant told me I was badly constipated and I also explained about him telling me to take Laxido 3 times a day (with limited success). I also told her that Laxido gives me terrible headaches and my leg get painful cramps, which only happens whwh I take them. I also pointed out what you mentioned about NICE and shouldn't be taking laxatives. 

After all of that she told me that I need to get on top of the constipation and take Magrogol (which I have), also to take milk of magnesia, also to take a tablespoon of henna and something called milde linseed. And to eat more, which I don't like and foods with a skin, such as grapes.

So I have done everything I can. I hope all of this works. I am so fed up with it and it's getting me down. I sometimes think no one is taking me seriously, apart from yourself and Linda.

I thought I would give you an update.

Enjoy your day and weekend.

With love and kindness,

PS: Ian,

You will be flying on your medication, especially the Tramadol. Saying that, the pain team in hospital gave it to me and it didn’t have any effect on the pain or give any hallucinations. However, another lady took it and she thought she was with a tribe in the Gautamela forest!. I take prevailing for pain and morphine for the pain I get in my rectum, which of course, I have to take, along with paracetamol too. I think we are all a walking medicine cabinet, ha, ha, ha.

This constipation is a flaming nuisance and I really hope it doesn’t bother you, like it’s annoying me. Hopefully, with what the stoma nurse told me to take to get on top of it, may help you or you need to reference it with your stoma nurse.

Take care and love from,

LisaCardiff

Hi Lisa

Never worry you didn't upset me in anyway, I just wanted to point out the official line from NICE.

As I go further into the problems we all have to endure I am coming to the conclusion that medical professionals are just like us. They have the same solution as we do trial and error, everything to them is theory and the only people who know nay understand the problems of an ostomate are the people who actually have a pouch or two stuck to their bodies and are either ileostomates, colostomates or urostomates.

That's my Friday rant over, almost! I'm going to suck a tramadol or two.

I hope that you get some relief soon

Have a good weekend 

Ian

Hi Ian,

Tank you for all your kindness and support.

The stoma nurse wasn’t happy when I mentioned the bit about NICE (is it pronounced like nice as in sugar and spice or NIce, as in the Cote D’Azur?), but I thought tough! I am annoyed too.

Anyway, I have just taken a Magrogol and I will have a dose of milk of magnesia after lunch. It’s all go.

 I hope you enjoyed your Tramadol and had a good trip, man!.

Enjoy your day and carry on being naughty.

Hi Lisa,

Just a thought but if you have a colostomy, have you ever discussed irrigation with your stoma nurses? Irrigation is a method whereby you introduce water into the bowel and flush out the poo. Some irrigators can get 48 hours on one irrigation. My stoma is a bit temperamental but I irrigate once a day in the morning and I can usually get to evening without any breakthrough. It's given me back some control, and I wouldn't be without it. Anyway, just a thought. Hope today is a better day for you. :-)

Linda

Hi Linda

Thank you for idea, however I was told I am unable to irrigate due to the damage caused by radiotherapy. But it was a great idea and much appreciated.

I have a little bit of movement and I will take a dose of milk of magnesia.

Thank you for your kindness,

hi 

my stoma is called Phred 

and he is very quixotic and a diva

i chose his name as it was positive...rather than the alien i felt him to be just after the op(15 Sept)

Take care Linda - we'll get there!

hi 

my stoma is called Phred 

and he is very quixotic and a diva

i chose his name as it was positive...rather than the alien i felt him to be just after the op(15 Sept)

Take care Linda - we'll get there!

I have called mine Gollum. Small and annoying and cannot get rid of it - yet !