Hi i'm daisymayalbie, I have had my ileostomy and fistula since 25 October 2017. I had breast cancer and one round of chemo which perforated my bowel and developed sepsis. I spent 3 months in hospital 3 of the first weeks on intensive care unit with several days in an induced coma . I hate my situation now as it's totally destroyed my confidence and life. I have bad lungs through having pneumonia 4 times so anaesthesia is very difficult as my lungs tend to collapse. I want to reverse my ileostomy and fistula because my flow is constant and I get very sore around where the bag goes. I don't feel I have the support I want it's as if I have to put up and shut up. The chemo has caused other illnesses, RA (Rheumatoid Arthritis) and diabetes 2 due to having to take Methotrexate for the RA, which also lowers my immunity. Makes me wonder what else it's going to cause. I do try to put on a front and say i'm ok but really i'm not. Has anyone got any tips on coping and dealing with things. I've found family and friends avoiding subject basically because they don't know what to say to help.
That’s the very best news.
Thanks for the update JoshA
I am delighted for you I remember how worried you were
Make sure you celebrate the amazing news
sending you a hug x
Ann
Wow. I’ve never heard of a wound vac I just Googled and it looks similar to a drain with suction power.
whatever he did it sounds like he’s a good judge of the best treatment for your Mom
Have a great time in Florida make sure you have some fun in between the packing.
I’ve found two and a half hours works enough for me. Your Mom may feel the same
All good with me thanks for asking
Take care
Ann
HiJoshA
How lovely to read such a good update-your mum has done really well, and I’m so glad to hear how things have turned out after how worried you were about her. Well done to your mum! And what a relief for you too. All best wishes going forward.
Sarah xx
