Hi
I had my surgery on 12 June and to cut a very long story short, the first op of ultra low anterior resection (with temporary ileostomy) was unsuccessful. I then had emergency surgery on 17 June and a permanent colostomy was formed which at the moment is inactive and called a mucous fistula. So I ended up with two bags for the price of one!
I’ve been very poorly but after two weeks in hospital came home 10 days ago and am recovering slowly at home.
I’m managing the stoma bags OK. It’s a bit of a nuisance having two in this hot weather but I’m coping. After a few months I’ll have the ileostomy reversed and then the colostomy will take over.
My question is - when I’m in the shower the bags (Coloplast Sensura Mia - grey ones) do get wet despite my best efforts. It takes ages for them to dry and meanwhile they sit on my big wound (low horizontal across belly - like Caesarean scar) and make it damp. I did buy some lovely NHS big knickers with an internal pouch so they help keep the bags off the wound but then they get damp too! Can you buy some kind of bag to go over the stoma bag in the shower? I haven’t found anything online. I tried a thin plastic shower cap but that just filled up with water and was not successful!
best wishe
Camelializ
Thanks for the info. I am a newbie three weeks today and was toying with a bagless shower with concerns of what you just said. Many thanks again my bags staying put. I’m paranoid about damaging my stoma. It’s given me a couple of frights. This thread is really helpful
Ann
Hi, having had ileostomy using bags for 9 years, I have had hundreds of showers while wearing a bag, never had a problem, always dry the bag completely with towel. Sensuro mio bags do not absorb water.
But, on the other hand, having been a plumber all my working life and accepting that output from ileostomys are generally fluid, I can see no problem in showering with no bag as any discharge is washed away and ends up in the same place as normal faeces do.
Hi guys, Had my emergency ileostomy 9 years ago, not cancer, Ischemic colitis, had a pleasant 2 months in hospital, not. Told it could never be reversed, no colon left. Given 1 in 6 chance of leaving hospital. But all good, manage stoma no problems. I would never even consider a reversal op even if it could be offered. The one good thing about a stoma is that I have never had to be worried about a mad rush to get to a loo, even after a bad curry lol
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