Bladder cancer

Hi Julin,If you scroll back up to Sarah’s message to you and click on where it says Bladder cancer forum that will take you to the group.I’m glad the stoma nurse explained a lot.A notebook is a good idea I took one when I saw the surgeon.Love Jane xx

Hi Julin 

You have already joined the bladder group. If you click on your own name, you can see which groups you are in. Click on the group, and it takes you there.

Under your own name when you look at your page, you will see “activity”, and if you click on that, it will show you all the posts you’ve replied to or made in any of your groups. You’ll soon find your way around the community!

Sarah xx

Thank you so much, not very good on internet 

Please don’t worry about it. The forum can be difficult to navigate at first. But ask any questions and you’ll get advice and guides on how things work around here! 

All of us were new at one point and had to learn, so we’re happy to help you.

Sarah xx

1. Good afternoon Julin, I've had mine since March. I'll be honest I hated it, thought my life was ruined etc etc. I just couldn't get my head around it. After a few days at home you start to accept it. The stoma nurses are brilliant. You get the odd leakage to start, it's finding the right bag that suits you. I'm about 5 months down the line now and I don't like mine tucked in clothing yet I feel as if it's trapped. I wear long t shirts and loose fitting clothes. Hope this helps 

Nell26

sorry about delay reading your comments am away having a break prior to surgery and the internet here is almost not existent, I think it will Come more real once the operation is done, though sooner the better as in pain at present. Really worried how people will react if they realise. Hope you get more used to your stoma soon, I have no idea how long it will take me