Breast cancer

Hi Chelle1,

Just thought I would say Hi as just read your message and then your profile and you sounded similar to me! I am still getting numbness and pain in my arm from the nodes being removed, but I only had my lumpectomy about 4 weeks ago. My tumour was 8 out of 8 positive for both Oestrogen and Prgesterone but negative HER2, but luckily no need for chemo as the stage was 1. I have started the tamoxifen for about 10 days now and other than a few headaches I have been fine so far.. I am so pleased you are coping with your treatment and you have so many friends caring about you. My friends and reletives have all been wonderful, more shocked than me, I feel like it is still happening to somebody else..

take care.

Best Wishes

Dracsam (Lisax)

Morning All

Great to hear from you, Chelle and to know that the CMF is treating you kinder. It's not nearly as bad as the Epirubicin is it?

Thought I'd got back to normal on Monday. But last night I fell sound asleep at 10 pm. Tea at 4. Tea and Toast at 5. Tea at 6. Breakfast at 7!!!!!

More chemo and steroids today so guess I'll be bouncing again!!

Paula, are you still treading the boards or are you back to normal yet?

Marian, I think this is your first week of radiotherapy. How are you coping? Thinking of you.

Margaret you will be done with the frazzling today. I do hope that you can now have some time off from visiting hospitals and that you are keeping ok.

The sunshine has gone from here now (MIdlands) Think I need to find a cardigan!!!

Love to you all.

Jean x

Hi ladies and gents,

Thanks Paula, this chemo drugs are alot kinder than what jean and i were having. I'm even noticing some new hair growth in patches on my head...woo hoo!! My hubby says it's at the gooseberry stage (mostly smooth with some fluffy bits lol!) I say gooseberry is good, i'd take anything now. Glad you've got your wigs sorted, i wouldn't be without mine and like you i ordered 2 different colours..well we might as well get as much fun as possible out of this situation!! I don't like the sound of you coughing up blood! Let us know how you get on. x

Lisa thanks for your message, it's comforting hearing from people in the same boat. I'm so happy for you that you haven't had to go through chemo or rads. Lets hope your headaches stop and you have no side effects with the Tamoxifen. I too shall be taking these tablets after my chemo finishes (Autumn time) so i'm keen to hear how you get on with them. Will you be having your ovaries blocked too?

Dearest Jean, i'm so sorry that you still can't sleep through :-( . Are you tired during the day? Good luck for today with number 2. Apart from being nocturnal, how are you finding CMF? You're right about needing a cardigan today..it's alittle chilly outside!

Yipeee Margaret, how fab to tick another treatment off...woo hoo! You must be over the moon today. Whats next for you?

Hi everyone else, hope you lovely ladies are keeping well.
Love and hugs to all,
Chelle x

Hi Ladies,

Well, the sun has gone, but at least it is not raining...

My friend popped round today and took me out to lunch as a treat (better than a bunch of flowers). We went to the Red Lion in Shoreham in Sussex, it was lovely and the sun WAS shining.

Reading all your messages, I just did not realise how many different types of chemo there are. Choosing your wigs and wearing out different colours totally, eg blonde then dark, does make a grim situation sound such fun.. well done girls for being soooo positive...

I am waiting for some deep tissue results but I am hoping they will be fine (taken when they did the lumpectomy, all other results in but still waiting on these.. seems a bit strange but will have to wait and see. Chelle, I am having radiotherapy but there is about an 8 week wait, so hopefully next month in July should be getting the tattoos, then 3 weeks of rads, 15 sessions I think.. will let you know how it goes. My arm is still quite painful and very numb, but not on any painkillers now so things are improving..

Hope you all have a lovely day and good luck with the chemo girls...weird combination, steroids and chemo, do the steriods help you 'take' the chemo??

Love

Lisa (Dracsam)xxl

Hi Jo,

So pleased that you are out of hospital and it was not as bad as you thought. Time to take it easy now and rest. I really hope that your results are going to be ok. Like you say, there is a lot of support around and I am sure you will be fine

My breast care nurse gave me a lovely cottle love heart cusion for after the lymph node and breast of, it fits under your arm just perfect. It has been invaluable..if your should gets stiff, try a light cushion and it justy allows your shoulder to drop and rest as you find you tense up..

Take care

Lisa (Dracsam)

Hi all Glad you having a break from the children Chelle - it is hard work with children all the clubs they attend and wanting friends round to play as you not always (usually) got energy to take them places. My son goes to air cadets twice a week and my daughter does street dancing. I also sleep 11-4/5am and then have a nap 1-3pm before children get home from school.

My pup is very good but he obviously doesnt like being alone in the kitchen at night and barks and scratches - he wakes the children up and my son in middle of gcse's so i end up getting up with him and have been playing tug of war with a towel at 4am in the garden - neighbours probably think i proper loopy. I found the first 3/4 days after chemo everything tasted vile even water. then days 4 onwards eat like a horse - yesterday i had 2 weetabix, then half hour later had 2 toast with peanut butter then hour later got mcdonalds sausage egg muffin then 2hrs later had roast chicken butty then 4hrs later had fish chips peas and curry sauce then before went to bed at 11ish had 3 weetabix, the eating before i got in bed helped me sleep better and more solid sleep. and i dont seem to be gaining any weight also???

PC wont let me paste a pic of TREVOR (pup) so i will just have to put him as my profile pic???

Jo great your home after mastectomy :-) keep well and smiling :-) :-) :-)

Dracsam i had 2 days worth of steroids plus they injected some in before they gave the chemo drugs and i felt high as kite giddy and totally couldnt speak without losing my breath (but i do talk a lot) i think they just get your body through the first initial shock of strange drugs entering ya body but think they also help and work with the anti sickness drugs and give better effect. i listened to what jean and chelle had said about - DONT CLEAN HOUSE TOP TO BOTTOM etc when feel high on steroids as you will come down heavier than if you relax when high and giddy - i sat on my laptop and stayed as calm as i could while buzzin and have not been out of action at all. yes tired and dithery but like say i eat like horse and by my 3rd or 4th snack/meal my energy gets better and feel ok.

Paula i like it :-) about if you had hair it would curl hahahaha, i too had wig fittin on monday and chose a flicky out choppy wig (dad said it like Zoe Wanamaker out of THE FAMILY programme) i said no its Natasha Kaplinsky haha, my 16 yr old son put it on and he looks bloody good in it (scary) though a bit like that irish lad who was on x factor Eoghan Quig - my daughter had the stockinette thing on and she looked the double of Dafyd Thomas, i left wig on after fitting as it had given me helmet hair :-) but wilst drivin home i hutched it up at front as it was annoying me , then proceeded to chemist with mum and she whispered in my ear - what you done with your wig you look like got lot of hair on top then i realised and pulled it back down into place. Bloody uncomfy though - comes low down on forehead cant imagine it stayin on for long, just worried if i go to pub in it it will bug me and i wont be able just take it off (i will take bandana in handbag so dont have to go home in a hurry to get it off). Chelle you said you wouldnt be without yours - does it not drive you mad or is it just getting used to it?

Everyone else if i not mentioned you - sorry it is so hard to follow everyones progress - but i do read everyones chats and wish everyone good look no matter what stage you at. x stef