Breast cancer

FormerMember
FormerMember
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Hello my name is Heather I have just been diagnosed with brest cancer last week for the first time (and last I hope) Both my sisters have had cancer,one died seven month ago Im a bit scared of what to expect with the chemo. Can anyone tell me how soon after the treatment do you start to feel ill? How soon do you lose your hair?
  • FormerMember
    FormerMember
    Afternoon all,

    Hi Sam so sorry you have had to join our club and are going through this awful experience. As Jean said you have come to the right place. I've had lots of support and advice from the lovely ladies here. Finding out you have breast cancer is a real shocker isn't it? And like your mum, i think it's harder for those around you to deal with it. We on the other hand just go into auto-pilot and take everything that's thrown at us hoping that we shall get through the coming months and end up cancer free. These days the treatments are very good so try not to worry about your tumour shrinking as i'm sure it will. Please let us know how your hypnosis and treatments go. Good luck x

    Paula good luck for tomorrow your nearly through the evil AC. It's such a relief to finish the nasty chemo and move on to a gentle one. Will your hair start growing on Taxol? I only ask because Jean and i started on a nasty chemo then moved on to a kinder one which doesn't make you lose your hair.
    Were you considering a change in career direction before cancer, or has having cancer made you think about what you want to do with the rest of your life? They say people take on a new life after going through such a tough ordeal. I love the idea of running a hotel, maybe i should give it some thought :-)
    Hope you manage to find some yummy, low cal food. If you do let us know so we can all try it :-) Good luck with your mission!

    Camilla your welcome. Glad you've reached a decision, something i can't seem to do these days!! Good luck for Thursday and i hope chemo is kind to you. You are definatley not mad, we just want to get on with it and finish as soon as possible!! Each chemo i pray that my bloods are ok so i can have the next with no delays!! I find myself wishing the weeks away but i don't want to wish the summer away...it'll soon be christmas :-D Lol!!

    Kay Thanks for filling us in on herceptin. It's reasurring to hear that the side effects from herceptin are nothing like chemo...phew!! It does sound like a long day but worth it if it gives us a reduced chance of recurrance...double phew!! And yes i'm worth every penny..or should that be pound!! :-D

    Jean what a start to the day you and Duncan have had. Lets hope your day gets better!! Wherever you have chosen to sit (garden or Wimbledon - shame you can't watch the telly from your garden!!), i think you should enjoy a nice cuppa tea or something alittle stronger and some tasty foods before tomorrow and CMF kills your taste buds again!!

    Hi to everyone, hope your able to enjoy this lovely, sunny day. Take care Chelle x
  • FormerMember
    FormerMember
    Hi everyone.
    Hi Sam, as everyone has already said, really great to meet you but also sad it has to be here. The only thing I can say at the moment is try to stay positive I find it helps. As my old Nan used to say 'Don't trouble trouble, till trouble troubles you lol'.
    Jean you are a nightmare!!!! Tesco'a finest has more calories in one meal than I would have eaten in a week lol As it is I am off to Tesco's cos I don't give a damn.
    Chelle, you are obviously not acting ill enough if the kids are happy for you to do the chores, shame on you lol. Selling the hotel was a decision J and I made when the kids started to roam free (BC). We had made a conscious decision to be around until they stopped being strapped to our ankles and then it was back to before we had kids lol. Seriously we are now looking at having a small business which we seasonaly run for six months and then bugger off somewhere hot.
    Off to raid the fridge now xxxx
  • FormerMember
    FormerMember

    Hi All

    Hope the sunny weather is making you all feel a bit better.

    Stef like you the number of times I have written on this thread then lost it all I now do it on Microsoft word then copy and paste and I can keep turning back to the thread to catch up as I go . My husband is doing ok thanks he being checked every 3months, he has just been put on 6 monthly checks by his oncologists but he also see his consultant who done his surgery every 3 months, so they are keeping a good eye on him. I had chemo and finished radiotherapy a couple of weeks ago, I am now waiting on a catscan in july to check my liver as I have a fussy bit they are keeping an eye on and to see if the Tamoxifen have any affect. Sorry to see your chemo make you feel so batted ,most of you talk of brothers I don’t any brothers but I have 5 sisters .

    Jean you mustn't be impatient with you hair it seem to take along time from when you first notice growth but once it get going it soon covers the head ,my eyebrows are back and my eye lashes are thicker again . hope you chemo goes well tomorrow.

    Chelle Hope you chemo went ok today and by september I sure you will have a head of hair to be proud of ,as for a cold head I use to wear a hat quite abit as I use to feel the cold a lot , I ask about breast cancer gene as I have 5 sisters and 2 grown up daughters they said the cancer I got was just unlucky one, As for my nails they still look abit of a mess but I cut them very short as i broke one and it split have way down but it didn’t hurt when I cut it away and just left skin there I think the chemo must off killed the nerves as well getting a little colour back at the bottom so should be back to normal soon I hope.

    Paula sorry you have feeling abit down,don’t kick yourself to hard lol don’t be hard on yourself it can’t be easy when its taking you op longer to heal as well as going through chemo, hope your chemo goes well tomorrow chin up.

    Blossom, good luck with your op on Friday.

    Marmalade hope you are still keeping an eye on us and not working to hard

    Camilla I had fec-t chemo and was told the cold cap would be pointless wouldn’t help save my hair they said the only thing it would do is give me a headache. I wish you well on Thursday and if like me you wont have many side affects ,I use to have my chemo on a Friday and the Monday I use to feel abit weak,the only other problems I had like every one else the anti sickness tablet caused contstipation The pharmacist gave me lactulose as it don't work the muscles (i took it the day before chemo and a couple of days after to keep things on the move) as you will feel bloated and uncomfortable. Heart burn is another problem at night and only for about 3 nights gaviscon done the trick for me and the steroids use to keep me awake,I don’t mean to frighten you with these details but hope it will help you to over come these problems.With the 2 part of my chemo I had to take 24 steroids over 3 days.

    Lisa I have been on tamoxifen for a couple of months now I do get hot flushes in the evening/night but I don’t have any problem with head aches,pleased you arm is feeling better .

    Hello sam sorry you have had to join this thread but you are in the right place lovely bunch of people to chat to .

    hope everone else is ok take care Margaret

  • FormerMember
    FormerMember
    Hope today went well Chelle - rest up now.

    Welcome Sam :-) sorry you have to be here but it will give you a giggle when you need it and a big hug when you down. Hope the chemo does its best for you and that you wont need the op - i found that when i was told needed chemo - i was so upset would have to lose my hair that i would have rather been told had to lose a breast - which sounds so out of perspective i know but thats how bad i felt about the hair loss thought. I am sure its because having no hair is noticable to everyone and you worry about standing out whereas the loss of a breast can be concealed more easily. As it happens i have shave my head with razor today as was sick of it prickling on the pillow and itching, now i shine, and hair loss was a doddle compared to the worrying i did about it happening.

    I was paranoid in shop this morning as i stood in queue in my lovely red bandana with my make up on when a crazy old man was bantering with everyone in the queue very loudly - not sure if he knew people or was just bit lonely. Then he stood right next to me and said loudly HEY KIDDA I LIKE YA FANDANA - yes fandana ?- well i wasnt sure whether to clock him one for drawing so much flippin attention to me or whether i should have pulled the FANDANA off my head and shut him up good style. As it was i was very polite and kept my cool with every one looking at me and said back - YES IT BRIGHTENS THINGS UP A BIT DOESNT IT.

    Paula you will have to buy a big hammock that you can just slump in (fits any size hahaha) if the chair is not coping - i havent been ravenous this time just quite hungry and the thing i always fancy is never in the cupboard. Good luck for tomorrow with the AC nearly there now then onto next step - getting closer to the end all the time. Wow you run a hotel how exciting bet that does keep you busy and your mind of stuff and you probably find it hard to sit back as it is all around you whereas i am away from work and dont even think about it.

    Camilla i just had 2nd FEC last Wed and they give me steroid injection before chemo and send me home with steroids for the next two days as well as the anti sickness drugs which work brill for me and then i get an optional pack of anti sickness tablets which sometimes i take one in the morning if i feel a bit queezy on day 4 or 5 usually. Good luck for Thurs will be thinking of you.

    Oh dear Jean your poor hubby (and you) just what you dont need when you come out of Tesco. I sat in garden as i am not into sport on TV then ran in at 3pm as the heavens opened. Your grandson is a gem :-) I cant wait to be a grandma and my kids are only 13 and 16 hahahaha, just think it be lovely once my chicks have flown the nest that their little ones can come and stay at weekend - i need to be needed so when they leave home i will probably have lots of little springer spaniels :-)

    Stef x
  • FormerMember
    FormerMember

    Morning all

    Thanks for your words of welcome, I already feel part of the “gang” lol.Does chemo make you put weight on?? I really hope not, I was planning on losing at least 5 stone!! LolThe hypnotherapy session was cool. Odd, but cool. Although I was totally aware of what was happening and of my surroundings, I felt so relaxed that I swear I was snoring at one point but couldn’t do anything about it. Pam, the therapist, took a recording of the session for me so that I can replay it at anytime to just relax me as she explained the more relaxed you are the better medication working with the power of the mind will heal and restore natural balance. Sounds a bit clap trappy I know but I’m a big believer in mind over matter, it’s just I can’t get my mind to reinforce the positive. As Pam put it, she’s going to work to get the angel on my shoulder to speak louder than the devil on the other shoulder!! I asked her when I was under to convince me I had a gastric band fitted – kill two birds with one stone!! Lol I’ll have my next session with Pam once I know when chemo starts as then she’ll relax and prepare me for what’s to come and how to cope with the side-affects.

    Thanks everyone for your words of encouragement, that makes me feel more positive about my tumour shrinking. I think I’m lucky as it doesn’t look like my tumour is anywhere else in the breast, so if it shrinks, I get to keep my assets!!

    Jean, I’ve taken your advice and filled in my profile – thanks for that xx

    Stef, I know what you mean about the hair loss. At first that’s what I thought until I really thought about it, now I’m thinking bring it on, I can’t wait to get a wig. I’ve always had short hair, it’s very thick so it doesn’t grow very long before it goes very bushy, so I keep it short. I’ve decided to have a shoulder length wig, in red, so it’s very different to what I have naturally. If I’m going to do this, I’m going to have fun with it!! I love hats too, so have already ordered 2 from the Suburban Turban website, they’re not cheap but they’re sooo pretty.

    Well the sun is shining here today, so I hope you all have a great day (or as great as it can be). Look forward to talking to you all again soon.

    xxx

  • FormerMember
    FormerMember
    Hi Sam, I'm not sure it's the chemo that puts weight on you so much as the side effects. Because they give you steroids for a few days I find I am always hungry. The other side effect is the metallic taste you get in the mouth, it makes me constantly look for food which will over ride it. Like Jean I didn't like sweet things before, now I dream of cakes and puddings lol.
    Please bare in mind though that everyone is different and some people don't experience some of the side effects, hopefully you may be one of them. xxx
  • FormerMember
    FormerMember
    Hi Paula. Well in that case it's another thing to talk to my hypnotist about lol
  • FormerMember
    FormerMember
    Hi Welcome Sam and anyone else I new here. I am finding it hard to keep up it must be my chemo brain. Paula sorry you had a bad day I hate when I feel like that but you cant be brave every day. I am on weekly Taxol for 20 weeks normaly have it on a Thursday but my consultant is off tomorrow so having it a day early going this afternoon. It is not so harsh as FEC I think thats because its weekly. Have to spend hrs at the hospital today I go at 1 and will be lucky to get home for 7pm. The treatment takes about 3hrs its waiting to see the consultant then the meds for the chemo take an hr or to to arrive. Hope it goes better where you go. Unfortunately my hair has fallen out so sorry but you will still have to ware your wig :( Never mind it means knw bad hair days).

    Some of you asked re insurance for my Ibiza holiday. My consultant advised me not to bother as a flight home is only 3hrs and wont cost as much as the insurance. I am covered for wverything else but my cancer so fingers crossed everything will be ok. There is mention on this site of some good places to get insurance dont have time to look but if you want to know the names ask and I will find them for you.

    I hope everyone is good today I am still in my pjs so must get going the good thing for me is the hospital is only 15 mins away by car I drive myself there and back althought they dont know that I kid them on someone is collecting me. I dont want to rely on friends every week when I feel fine to drive myself. lol Very independant!!!!!!!

    Take care everyone and all the best to all that is having treatments today

    Lots of love Lorraine xxxxxxxx
  • FormerMember
    FormerMember
    Hi Sam, just read your profile and wanted to say don't rule out reconstruction - you can have a reduction on the other boob, so they match. Just because one Doctor says no, doesn't mean someone else in another hospital can do it. all the best
  • FormerMember
    FormerMember

    Hi everbody,

    Hi Lorraine, that is a long time you have to spend at the hospital. If i only had to have the chemo i'd be in and out in half an hour, it's all the waiting about that makes it half a day for me!! At least you don't have a long drive. Sorry about your hair, what colour wig are you this time? :-). Getting insurance is a pain, as if it's cheaper to get a flight home than be insured!!! Hope all goes smoothly this afternoon for you x

    Hi Paula i think you're right about the steroids and eating nice tasting foods when your mouth tasted bad that makes you put on the weight. For me, i find i'm also eating when i feel sick as it seems to make you feel better. I think Stef has said that too! Hope your chemo goes well for you today x

    Hi Sam, your hypno session sounds like a success. I think your list of extra's will just keep on growing!! :-) I need to book an appointment too, i would ask for her to sort out loads of stuff for me like stop me from eating!! lol. You are most definately part of the gang and your more than welcome for our advice. I like your positive attitude to losing your hair, i think most of us felt like you. I too have had fun with wigs, hats and scarfs...well why not, we need to enjoy something from this experience!

    Hi Stef, i know what you mean about your hair pricking the pillow...grrhh. Then like you i went through the smooth and shiny head!! The fluff i now have on my head still hasn't reached that prickly stage!! My brother and sister in law visited the other day. They hadn't since my head when it was smooth and shiny, so i whipped off the FANDANA (hee hee, you did make me laugh) i was wearing, with a beaming smile and excitedly saying how my hair has grown, only to be met with silence and shock!! Eventually my brother said.."what hair?? I thought you said it had grown"!! I said you didn't see what it was like!! Lol. My hubby on the other hand can really see a difference, and when i'm walking around the house with nothing covering my head, he says "you're just showing off now...hee hee" and i say yep :-D.
    I also like the thought of being a grandma and just prancing around the house looking after my family :-)

    Hi Jean hope your chemo has gone well for you today and there were no punctures along the way!! x So far i'm feeling really good on 2a, although my sugar levels have risen..boo!!

    Hi Margaret, like you and Stef i have lost sooo many posts on this site and have had to start writing them again...grrhh!! Soo frustrating!! I need to take your advice and write it in word. I'm pleased to hear your hubby's doing well and they are keeping a good eye on him. 5 sisters...wow. I always wanted a sister but just got the one younger brother :-) It's nice to hear that i may have enough hair to walk my 6 year old to school in September :-D. It's good your not having too bad a time on Tamoxifen, i start those in the autumn. Did you go go Ipswich or Cambridge for radiotherapy. It looks like i'm going to Cambridge as the hospital i have chemo in (bury st edmunds) works closely along side them. Hope your making the most of the most of your lovely swimming pool on these warm, sunny days :-) Good luck with your cat scan in July.

    Take care everyone Chelle x