My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Carrie-you are so blooming knowledgeable!!!! Ive really enjoyed reading your post and what ever we could do as a group or individuals would be fab (I feel like the red bulls are still in my blood stream!!) Im so sorry you and B had such a mediocre experience at your Hospital,maybe all of the Doctors and Nurses should take a leaf out of the Beatson clan and learn how to listen to the fears and hopes of their patients whilst also being empathic!!!! Love to you and B xx
Lesley -Only went to Glasgow to find out more info about the trial offering new drug cediranib and lumustine(excuse spellings)but was overwhelmed by the care experience we recieved,made our previous care package look like a wet lettuce!
CH- I really hope no one takes the Calender idea further,just eaten 3chocolate fredos!!!
Love to Emma,Izzy,Joan,Greentree,Diane,Lisa and Jay thinking of you all this evening sending lots of warm friendly hugs xxx
Jay my heart goes out to you. I know words are not enough right now but I am truly sorry. thinking of you at this hard time. he was an amazing man & you a truly amazing lady. Your in my thoughts. Emma x
Jay - Im so very sorry to read of Jon's passing. Your love for him truly shined through in all your posts. Wishing you and your children much strength for the coming days. Words fail me right now but please know that Im thinking of you all tonight. xxxxx
I’m so sorry to hear of Jon’s passing, so sad for someone so young. Words can never be enough. Thinking of you tonight.
Debbie, I’m so glad your experience in Glasgow was positive. I have always been happy with our treatment there. We still did have to ask lots of questions but I always felt they did their best to answer honestly.
Carrie, hope B is comfortable – you must be so looking forward to your friends coming over.
So sad to read your post and can only echo what the others have said - Deepest sympathies and love to you - Hope there's some help and support for you in knowing we'll all be thinking of you and sending our love tonight but imagine this is a terrible bleak point . You both had such a great love for each other and like you said, he'll be all around you still and I believe always will be.
I'm so sorry - words seem inadequate, don't they? but they're all we have - Wish we could all be there for each other in person sometimes just to give a hug - Be thinking of you
I know what you are going through, my husband died on 1st August 2008 of GBM4 - I know you have some unbelievable (this is how it will seem to you, so unreal) times to go through - it is nearly 8 months now since I lost my husband, married to this March for 35 years had been "going out" with him for nearly 40 years. It is so hard to understand why, there is a reason and one day we will know. I don't really know what to say I cry myself to sleep most nights but one thing I do know he is in a better place and free of pain and I will join him.
