My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
I was at every consulatation that Martin had up until about a week ago, i would like to attend future appointments, obviously i am going ti have serious conversation with his daughter, to try and fix out the future. Martin has only just found out how ill he is till today, up until then he thought he might get better, for the moment am going to just let him stay where he is and hope he comes home. I am concerend that if he gets no further treatment will it shorten his life span, can hte consultant stop treatment if its helping him and he is fit enough.
your right they probably could not stop there probably are loads of people out there on their own who miss some treatment, bu t Martin has missed a whole week of temodal, so they wont give him any more he is now is in his final week of treatment, because of this they wont know howeffective its been and they say its doubtfull that he will get the 5 days a month treatment. What a big blunder Martin and his daughter made by missing the appointment last week, it could cause him to loose months of precious time. I just wish that i could get the old Martin back for an hour so that i could talk some sense to him, thanks for your help love gayle xx
Spoke to hospital and Martins daughter today, we getting an appointment to go an see Martins consultant next week to see whats going to happen next. love gayle xx
Hi Gayle, how are you today? You seem to be having a hard time right now. I cannot really answers your question but I've read someone's post on 'we talk brain tumours' called sarah_uk and it appears that her father is showing the same symtoms as your husband - she mentioned the term psychosis. This doesn't really help but it is obviously the tumour must be pressing on a part of the brain that is making him react as he is at the moment, it is not personal so try and be thick skinned, which itsn't easy. Glad that you have a hospital appt sorted out. Good luck next week.
I feel a bit down today, spent last nite with my mum and she has been on my mind today. Sure I'll bounch back tomorrow.
sorry to hear that you are feeling down today, hope your mum picks up, everyday just seems so horrible just now, its hard trying to keep things kind of sane for my daughter Martine, she is just missing her daddy so much. This bloody disease has got alot to answer for. Thinking about you and your mum. love gayle xx
How do you explain to Martine what is going on.. She must so miss her dad and the normal routine of family life. I know what you mean about this disease but it just seems to be getting so common now. I dont like to compare cancers but this one really has something to answer for.
My poor dad has just been on the phone - he has been so strong, beyone expectations but you know men, don't like being on their own. Although my mum is home she sleeps most of the time now and he just feels so lonely. There generation is so different from ours today - they never lived on their own. From their parents, straight to marriage. I live in London and we took my parents to the theatre a few years ago and I asked them to meet us outside M+S in Victoria Station. My dad was amazed and couldn't get over all these people buying 'meals for one' I had to laugh - he has never gotten over it. Bless him. x
Martine is intelligient for her young age, she knows her daddy is very ill, not quite as serious as it is,i only hope god gives us strength for that one. She knows her dad has a brain tumour, the operation and the medication, has made him very unwell and that he dosnt know what he is doing or saying and that we can only hope that he gets better and comes home soon to us.
It must be so very difficult for your dad too how many years have they been married? Has your mothers personality changed? He must be scared of what lies ahead for all of you, i know that i am. love gayle xx
