My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Hi Lorraine, I'm sending you lots of love and thoughts at the moment. I hope your mum is as peaceful as can be. Take strength from the fact that you have been with her and stayed by her throughout this horrible journey. You have come across as totally dedicated daughter and your mum will have realised that.
Dear Lorraine I'm sorry to hear your mum hasn't been good. Just wanted to say I am thinking of you, and know something of what you feel right now. You are just fantastic, just keep on supporting both mum and dad as you have been, lots of love diane xx
Wishing you all strength and your Mum a peaceful experience at this sad stage.. Don't really have the words to adequately meet the situation but you've been a fabulous daughter and your husband's been a rock too. Be thinking of you and saying a prayer
Robs gone off to bed, again, seems to spend most of his time there now. Good news at his scan on Wednesday, still no new growth and the swelling has reduced so they are reducing his Dex to 3mgms again but have increase the Keppra to 1500mgms which is making him tired?? He is however talking of going on a cruise for his 60th in September so that's a good sign.
Gayle you've been abroad, how did you get insurance for Martin?? any advice will be gratefully received.
Lorraine, so sorry to hear about your mum. Stay strong and believe that she will be in a better place when the time comes. Your wee line to her was oh soo lovely, from the heart.
Greentree, hope your Dad is ok and that you are keeping strong, won't be long till your back here again.
Julie, how is Stephen doing, not heard from you, did you get my message? if you need to talk phone me.
Diane, Emma, Carrie & Becca hope you are all doing ok and enjoying this beautiful weather.
I sometimes look out and think, everyone elses life is going on round about me and mine is at a standstill in this house waiting, waiting and watching. Does anyone else feel like this or is it just me being silly??
Going now to get some lunch while I still have peace to eat it. Take care and love to you all
Lorraine - Thinking of you at the moment, it's such a horrible thing for you all to have to go through.
I've been keeping up with all of your posts even though I've been away for a few days. I'll post a mega long message soon, but this weekend has not been a good one for me as it would have been B's birthday yesterday. I've stayed in the house and a few people have visited, but I just wanted to spend the weekend on my own.
Hi Carrie The first's must always be the hardest- birthdays, Christmas, anniversaries etc, it must be so hard, but still you support others. Love DianneJ xx
Lorraine bigs hugs to you and your dad and Scott, here for you night or day anytime you need a chat I am here hun. xxx
Carrie, A big milestone for you yesterday, hope you have and had lots of support to get over this difficult time big hugs xxx
Eileen , we did go abroad and got insurance for a week for £50 through a company called mia mastertravel, they were fantastic, I will get their number for you tomorrow and post it on here for you, glad to hear Rob doing a little better. xxx
Emma, good luck for tomorrow hun. xxx
Diane, Lesley, Becca, Jay, Joan, Rona and everyone else bighugs to you all.
Martin been really tired over the weekend, but he wont sleep at night and he is so tired during the day, and very very paranoid, he now only on half mg of dex every 2 days and due to stop altogether I am thinking and praying this is what is causing this, has anyone got any experience.
