Glioblastoma Why Why Why <br/>

Hi folks,

Carrie - lovely to hear from you, good to hear your bearing up in some sort of way and even thinking of going back to work - wow, good for you - 5th of May must be the day for it...that's my first day back after being on 11 months mat leave, eeek! x

Gayle - hope you get your work sorted out, what an additional worry - HR is such a bleedin minefield (but our Becca seems to be a whizz!) Did Martin get up early and pack the sannies this morning?!x

Lorraine - Hope you have a nice night with your pal - I know were behind our parents and there for them 100% but its importiant for you still to have a bit me time, where you can hopefully switch off for a couple of hours - your pal's wee girl will help with that id imagine - wee tot's are like a soothing balm (or a nightmare, depends on their / your mood i suppose!) What a fab hubby you have, my paul is a bit like that..he happily sits with my dad when needed. What a small world...sharing the silverknowes spot! speak soon x

Diane - So saddened to hear of the rough time your going through just now - good that you have more help in place now though, hopefully this gives you a bit much needed respite. No you didnt miss much on the supernatural? side! - I went to see Derek Accorah on SUnday night, think he's on most haunted or something, ive never seen him before but went along anyway...now Im a believer (in what i dont know) and really hoped for a message (stupid or what?!) but no. I had a strange feeling that some people could have been "plants" but then I might have just been cynical seeing as Derek didnt call for me!!x

Becca - Your comment to your boss made me laugh! (not that the situation is funny obviously) - its just that people, through no fault of their own, really dont understand what were going through and how its nigh impossible to switch off. Hope the tabs are helping your dad to sleep - its so difficult for our mums eh, trying to be the strong ones on the outside but inside, falling apart. Cant be long until your run? Hopefully see you on fb at the weekend love...I went off it for a bit there but have succumbed again...fickle? yes! speak soon. x

Eileen - Hope Rob is doing ok at the moment?

Christie - Now that sounds like a cheeky wee tatoo youve got yourself! Glad to hear to had a fab time at Alton Towers and I see your countdown is on until you meet Michael McIntyre...14 days is it?!

Emma - Love to you and the girls.....hope your still singing forever in blue jeans....cant beat Mr Neil Diamond! x

Well managed to get my dad up to the Western General for a massage yesterday, its funded by the Edin Brain Tumour Trust (just the top, his leg still has the dvt) - was so delighted as that's 2 days in a row weve managed out - albeit for 2 hours and with his slippers on and aided by a walking stick. Today, he's not wanted to go out and is extremely quiet...i've found since he came out from hospital that he finds it difficult to finish sentences, he sorts of trails of mid-sentance so much and loses what he was saying all the time, i sometimes think he finds it easier not to bother?.
Anyway.....love to everyone out there tonight.
Lesley xxxxx

Sally - just wanted to reply to you before I go to bed as your post sounds so sad and full of guilt - please dont beat yourself up over this incident...I think if you asked most of us on here the same thing will have happened once or twice. My mum actually walked out of the hospital a few weeks ago when my dad was in as he was being soo rude to her and she was really hacked off with him..i made her go back (under duress!), in all honesty, it happens quite a bit and I have to tell her to go out the room and just leave it!. Your all under enourmous strain but at the end of the day, were all human and the stress and fear of this whole damned illness can take its toll from time to time. Im sure your mum knows how much you love her so let her know and just give her an extra big hug next time you see her.

gnight all

Lesley xxxx

Hi all

Lorraine, hope mum’s chest infection is starting to clear up. Don’t you go blaming yourself – that’s not allowed on here! Hope you’d a good time with your friend.

Hi Carrie, don’t worry , you could never upset me or anyone else I’m sure. Its good to see that you have been able to spend time with friends. I think the phased return is a good idea, it will surprise you how much you really need to rest and go easy on yourself for a while. I have looked at the brain hospice website many times and it does give a frank description, I know how things are going – just trying to keep hubby comfortable and keep myself sane at the same time. I have great support at home for which I will be eternally grateful.

Gayle, glad you got an answer from HR, you should get that manager who phoned you done for harassment! Obviously hadn’t a clue what he/she was talking about!

Becca, your manager too sounds like she doesn’t live in the real world. They must get taught these things in training, but really, what might be appropriate for boyfriend troubles doesn’t apply in this situation at all. How inconsiderate to ask for timescales, no wonder you were speechless!

Hi lesley, My son used to watch most haunted – it’s a bit scary for me!

Hi Emma, good to hear from you, sending you much love

Hi Sallye, sorry to hear your mum is so ill, poor thing. But don’t beat yourself up about it, it’s quite normal to react in that way when you yourself are feeling stressed and tired, I can tell you in earlier days I did snap at my hubby sometimes and felt terrible after. We are only human after all. You’ve done all you can to apologise, I ‘m sure things will soon be ok again.

Goodnight all

Diane xx

Hi everyone

Just a quick one, honest! I've got to take the car for an MOT soon, so I'm keeping my finger crossed hoping it will pass.

Sallye - I just read your post and you sounded so fed up that I wanted to quicly add to what the others have already said. Try not to feel too guilty about what has happened, the strain you are under is huge dealing with what your mum (and the rest of you) is going through and you'd have to be superhuman not to be affected by it.

The way I tried to not let it get to me was to think that anything like this was the BT and not B himself. I also wonder if your mum might have forgotten what happened as I know B's memory became very poor. It's just that you're also having to deal with her husband who has remembered. Is he now taking some of the upset that he feels for the situation out on you?

I'm sending you a huge hug.

Carrie x

PS Thinking of all of you xx