My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Im so so sorry to hear of your loss - I know nothing we can say or do can help but be assured we are always here for you as you have always been for us. Your an amazing lady who very lovingly cared for her husband and that always shone through in your posts. Sending you and your children lots of love. Lesley xxx
I can only second the words of others before me and say how sad I was to read of P's passing. He fought so hard and had such unswerving love and support from you. He is at peace now and I hope you can draw comfort from knowing that at the end, he was with the family he loved.I can't imagine how you must be feeling just now but I hope you and your children have people with you to give the comfort and care you need now. I always find myself at a loss for words every time I read that someone else I have come to regard as a friend has lost the person they love to this cruel disease. I send you much love.
Diane-Mum just told me the sad news as shes on the BT thread,Ive read your post about your lovely dream.of Ps passing.....I cried buckets as it was so beautiful to know that will be your lasting memory of your soulmate!!Thankyou for sharing such apersonal experience as always you are an inspiration to us all!!Sending you all the love and strength needed for the next stage of your journey dxxxxxx
To gayle,joan,lesley,carrie,jay,emma,becca,christie izzy and everyone else I have missed wishing you and loved ones peace and hope Debbie xxx
Gayle - Hope your enjoying your time at the caravan with your two angels, speak soon.
Lesley - How is your Dad doing is he still in hospital? thinking of you lots.
Becca - I wish you all the very best for tomorrow hope things are peaceful at home for you.
Carrie - Hope your doing ok, thinking of you lots.
Emma - I know you will be on your travels somewhere, well done.
Well folks things are pretty grim my end Mum's chest infection seems to have come back and knocked her for six again, I am hoping that is the case as she is just sleeping all the time, I am petrified she will be taken into hospital, its my birthday early next week and 2 years ago Mum was diagnosed on it, and last year was her last chemo day on it, please god let me have a birthday without medical issues - please.
I really don't know if I will be returning to work on Wednesday or not, Mum's mac nurse spoke to me yesterday and told me not to give up just yet and she said when the time comes I will be signed off from doc anyway but when I see her so ill as today no way could I face it, I am worried sick already on the thought of going back and especially as on my return I have to take Management Team Minutes I know for a sec I will never concentrate as its Mum on my mind constant ................. hospital bed is getting delivered on Wed, its just like another part of my lovely angel is getting taken away day by day now as from Wed she won't be sleeping with my Dad the man she adores and has been married to for 35 years oh grrrrrrrrrrrrrr I hate this illness so much its robbed me of my best friend for the last 2 years. I was upset with the mac nurse yesterday saying my grieving is the now this is more hell watching my Mum suffer daily, tonite she asked for a gun Dad said what do you want that for to shoot me and she said yes, I looked and Scott and he looked at me I think the poor soul has just had enough and wanted the gun for herself, well folks I must head as the tears are starting to stream, its all becoming far too much and I hope I do get the strength from somewhere to see me thru ................
Lorraine, just had to send you a wee reply as you sound in so much turmoil right now...as nobody has any answers to this illness we are left to second-guess what is happening with our loved ones all the time - nobody can ever tell us what is truly happening, or what to expect, and half the time they are so wrong anyway. I truly hope its just your mums infection that is totally flooring her...we do know that any small thing can have a major effect so fingers crossed. Your mum has done so well over the past two years but that doesnt take away the pain that is happening now. Dont even think about work...if you need to be off next week, even just to help out then please do it...your work will understand. Just keep being there and doing as your doing..your mum will feel so comforted that your always there helping. My dad said to my uncle last week that if "he had a gun he'd shoot himself" - he also managed to get out yesterday that "he'd be better off dead" - its so very hard to hear but sometimes there must be a point when they think, no more? I dont know, its so difficult - i was up at the western earlier, my dad is in a medical ward, he was walking great, better than he has done since diagnosis, but didnt really have a clue who we were and keeps repeating himself constantly, im hoping he comes out of it but again, no one knows whats wrong and his scan was no different. Bloody awful for them eh. Anyway, pal, hope your ok now, sometimes things look a bit better in the morning? Try and get some sleep and speak soon.
Diane - been thinking of you lots today.
Love to everyone else and wishing you all as peaceful a weekend as possible.
Emma - just remembered your all doing your fantastic work today...Gayle mentioned something about a van breaking down somewhere? hope you manage to get there in the end!! lotsa love and luck. xxx
Just to give you all a update, Stephen went for his first scan last Tuesday, they told us everything was ok but they couldnt look at the original scan as the disc wouldnt open, Friday we got a phone call from the hospital to say Stephen had to go back on Monday, as they had now managed to open the disc and compare both scans and the tumour has grown, they wouldnt tell me over the phone by how much but said they would probably have to bring him off Temodal and change to a different chemotherapy. We are devastated. He is going worse as well, he now as hardly any movement in his right hand side and the seizures are getting a lot worse.
I send my love to everyone and will update you all tomorrow. xxxxxxx
You sounded so upset last night. How we all wish we had a magic wand to heal your Mum and everyone else affected. I hope she has had a comfortable night and that you feel a bit brighter this morning.
