My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Diane - My thoughts are with you at this very sad time, love to you and the kids, no words can say how sorry I am, I wish you all the strength in the world to get thru this difficult time remember we are all around for you and always will be.
Sorry folks I am too upset for Diane tonite to chat more, but thinking of you all.
Susan - Sorry I can't go to bed without saying to you that I am so pleased re Paul's results, I have been there in your position last year posting good scan results of Mum and its hard when the site is so sad due to recent loved ones passing on but this is an unbelievable journey for all of us it is like a rollercoaster as the ups and downs are unreal but I wish you a lovely holiday in my beautiful homeland yeah I am biased but Scotland is so lovely and I hope you get the weather and who knows if us scottish lassies are meeting at the time of your hol you would be more than welcome to join us.
Lorraine xx
Diane - Another hug for a lovely lady (((((((((((((((((HUG)))))))))))))) xx
Dear Diane - so sorry to hear P has gone but read your post on the other thread and was really moved by your lovely dream - such a remarkable vision, it seems like a message to you and to all who mourn the loss of someone dear who's suffered so much - sounds a wonderful image of hope that all sorrow passes for them and they are restored to all the strength and youth they once had... it must be such a beautiful image to hold on to, something that P would want for you to remind you of all that he was. Dear Diane, you've been so brave and loved him so well, he must be sending all his love to you from somewhere else - looking after you now - Hope you're OK and the children - The strangeness and sadness must be overwhelming... and the sitting still - that was a very poignant image too. So much love to you all tonight - be saying a prayer and thinking of you - take care
So glad Susan, that you came on and reminded us how good news feels... What a lovely feeling to share - you and Paul won't need a balloon for uplift at the moment - long may it continue!!! xxx
Lesley, Debbie and Becca hope that your Dads are OK tonight and Lorraine, your Mum - Easy to say but hard to keep the faith sometimes - Much love to you and your parents xxx
Gayle and Carrie - thanks for missing me!!! Things here are ok - David stays quite stable against the odds- Can't help thinking the supplements and Mistletoe are what keep him chugging on - We've had no official treatment since January and were told the thing was back in full force early feb - Thank God David remains stoical and steady - Still trying to get his steroids down - we're hovering around 6mg these days but are going to keep trying for lower - dosing him with Bromelain and boswellic acid (alternative anti-inflammatories) in an effort to slowly wean him down off the dex but it's hard going and half the time i still don't know whether his confusion and bouts of physical tiredness are tumour or steroid side-effect. We've got a parietal-occipital tumour so suffer mostly language and memory problems and thankfully no mood swings or aggression - he is still a very sweet man - I count our blessings in this as feel so sorry when i read of the personality changes that some people suffer and the effect it has on their familes. But he is very dependent now for daily tasks, struggling with cutlery, finding things - can't recognise words like ''It's behind you'' ''It's in the fridge'' -''look, over there, where my fingers pointing...'' AAAAArgh we can go round in circles for hours whilst i try and point out his cup of tea on the table next to him .. it's so weird but he's so lovely and patient and never says 'Why me?' or 'It's not fair' and i love and admire him so much for that.
Anyway next scan on Wednesday - nuff said
Gayle - SO happy to hear how something amounting to normal life is going on at your house !! Martin sounds great , hope the summer is a lovely one for you all and there's lots of happy times to come down at the caravan - Martine must be loving the improvement in her Pa . I know Reynard our boy, is always looking for hope for his Daddy - It's difficult to know how much they understand and amazing how they learn to help - Reynard's invaluable getting his dad to the Gents - i always have a dread David's going to end up in the Ladies now all signs look the same to him!! xxx
Carrie - you're a star - so steady and honest and such a pleasure to listen to on your posts - You give such a clear account of your progress on into this new life - It must be so hard but you never fail to give it your best - Hope work's ok and that you keep on bravely dipping your toe into the social life - I'm sure B's enjoying your pleasure in the car and willing you on , you brave woman. Thanks for sharing all this with us . Much love to you xxx
Dear Emma- hope all is slowly coming into focus for you - Hard to believe it's a month - How raw this month has been for so many on here. Wishing you and the children much love - Hope the fund-raising rolls along - keep on keeping on and keep that Duracell spirit !!! Matthew's forever in all our memories now as the life-force he was - I think of you and him a lot xxx
Love to all - sorry if i've not mentioned everyone - Hello grant'sNana - hope you'll find good friendship here - Glad to meet you and hear that your dear man is well - long may it continue! 'Live for the day' is our motto i guess and 'Hope springs eternal...' ! xxxxx
Night night all - Big hug Diane - xxx Group hug would probably be appropriate, I guess
diane - all my love and strength, i dearly hope you are ok xxxxx
i met michael mcintyre tonight it was amazing he is such a nice guy and lived up to more then my expectations it all feels surreal i cant belive i met him hehe, officially the best night of my life, loved every moment
looooooooooove to everyone xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Diane thinking of you and the kids hope you all managed to get some sleep last night, your dream sounded lovely, hope you can take much comfort from this. xxx
Joan, your post as usual was lovely and a pleasure to read, please keep posting you really are missed, sorry your having an up and down time David sounds an amazingly lovely man and he is fighting hard lets hope your scan results are good. Martin still takes his manuka honey everyday, since he started taking it he has been so well???, thanks for the advice. Martine is really blossoming since her dad got better, bet Reynard is a fantastic help to you. love to you all xxx
Carrie, bet you are loving your new car, hope you get a nice summer to get the use of it, Martin got me 1 3 years ago and it sure feels good letting the air blow your hair about and clear your head, you centainly deserve a wee treat. (((((bighugs)))). xxx
Lesley, hope your dad is better and the CT was ok let us know. xxx
Lorraine, hope you have a nice day with Scott and your parents speak soon. xx
Becca, hope your dad is feeling a little better, bet you feel ood being there full time to help your mum. xx
Christie, glad you had a nice time. xxx
Debbie, nice to here fro you hope you dad and all of you are well. xx
to everyone else I havent mentioned I send you all love. xx
Just spoke to Emma, she is somewhere in Wales supporting those fantastic firemen, I am really looking forward to get to meet her, well I must go now and get ready we are off to the caravan will speak to you all on sunday have as nice a weekend as possible.
