Glioblastoma Why Why Why <br/>

Hi folks

Sorry not been in touch for a little while been at Mum's most of the time and I could not get an internet connection there to use her PC to post to you guys.

Well life here for us is mainly the same, Scott and I off until 13 May on annual leave but we can't go far as we need to be around to help Dad to take Mum to loo, get her to bed etc but I also have to remember at the same time that my lovely husband works hard all year round and this is his holiday and thru Mum's illness we can't get off to the sun well we can but I don't want to ay for a holiday and just worry about back home all the time so thats why we have decided to stay at home and just dodge around, its my birthday next week so we might try and get away for a nite to a hotel just for something different maybe Pitlochry as its not far to get home if need be, as the nurses are now coming in but they didn't at the weekend or today with it being a bank holiday but I am just gonna let them come in tomorrow and so forth even though we off as really they are the professionals when it comes to it and also I have to think of the time when I go back to work, DN's coming in the now until a care package is put in place when that will be - who knows, sorry if I feel a bit despondant but sometimes I feel its like one step forwards two steps back these days.

Lesley - Lovely to hear from you, hope you enjoyed your few glasses of wine, no one can blame you for feeling a bit low, we all do its just part of this awful illness pal, Gayle was saying that we might meet up soon to arrange fund raising etc, I would really love to try and come so I can meet you just all depends on Mum your probably the same re your Dad, not sure when you return to work know its soon so hope it all goes ok for you, remember I am here anytime you need to chat.

Gayle - Great for Martin to speak up about BT's yesterday, you must be so proud of him, hope you have had a lovely time at the caravan, a year ago today we went to Berwick and had a great week with Mum and Dad, the weather was glorious, and Mum was so able back then scary what a year can do hun however at least I still have her with me and for that I should be grateful, chat to you soon.

Becca- So sorry to hear that things not that great in the Boyce household, same applies to my Parents too just so sad to see them like this eh and as you say it tells on the other halfs who do not have the illness, my Dad lost lots of weight and tired all the time, I will sponsor you pal before Sunday and be in touch too to wish you all the best.

Susan - I really hope the balloon ride takes off tomorrow, love to you and Paul, hope your Dad doing a little better, thinking of you.

Diane - Thanks for all your support re carers etc, hope your doing ok and your youngest son did not bring you back too many dirties!!, love to you all.

Sally - Hope your lovely Mum is feeling a little better,

Laura - Sorry you have had to find us but this site is amazing for support, sure you will benefit from it just like all the rest of us, happy wedding plans it will be fab, I loved organising mine it was such a special day.

Talking of weddings folks when Mum was first diagnosed and I got some counselling when I went back to work, the counsellor spoke to me of my future and what I would like and one of the things was that I have always wanted to do was renew my vows for my 10th anniversay which is 2011 so we have been looking at special places and started saving, I better diet a bit though to get a new frock, Cyprus looks a favourtite the now or the Maldives if i get my way but Scott does not like long flights so folks its something nice that I do have planned in my life and just another excuse really for a braw frock ......

Take care my friends love always Lorraine xx

Hello all,

Balloon flight off again but no surprises this time as it has been cold, quite windy and raining off and on. Will call their office tomorrow to rearrange yet again...The chilly weather also meant that our BBQ did not go ahead as planned. We had the same food but cooked it in the kitchen and ate indoors. I made a big jug of Cosmopolitan and my girls and I polished it off together. It was lovely.

We've been up to Liverpool again today to see Dad and he is so much better than this time last week. He is very thin and frail but much more like his old self, personality wise. He keeps asking when he can go home but we don't know yet, maybe later in the week if he continues to improve and as long as he keeps drinking and eating.

Lorraine, I love the idea of renewing your vows for your anniversary. It will be something to plan for and look forward to but please can I ask what is a "braw" frock? You Scottish girls have some lovely words!

Lesley, hope you are feeling a bit better now. Big hugs to you and everyone else.

xxxxx

Evening everyone.

Diane, sorry to read that you are going through such a difficult time just now, thinking of all of you big hugs. xxx

Becca and Lorraine, so sorry to read things are difficult for you two girls too, Becca have you made your mind up about your job yet? Lorraine hope you and Scott get some quality time together on your holidays lets hope we can get something arranged soon to go for a wee vino. love to you both. xx

Lesley, back to work hope that your organised with your childcare look forward to meeting you too soon. xx

Sue fingers crossed for the balloon ride tomorrow, lets hope it all happen for you and Paul, hope your trip to liverpool went well to visit your dad. xx

Carrie hope your bbq went well yesterday and the rain stayed away. xx

Emma, hope you are well and the girls. xxx

Dianne, Jay, Christie, Eilleen, Laura, Sallye, Joan, Izzy, Julie and everyone else thinking of you all. We just got home from the caravan, getting washing etc all done now.

love Gayle. xxx

Hi everybud

Very slight hangover this morning...which lasted all day strangely enough!

Susan - your cosmo's with your daughters sounded great...I couldve done with you sending me some up today for a "hair of the dog"! Shame about the balloon trip again, maybe soon though, were in for a really hot summer (apparantly..wont beleive it till i see it). Hope your two men are as well as can be. x

Lorraine - what a lovely idea to renew your vows..anywhere hot would be so nice eh...id actually settle for a holiday at haggerston right now! glad you and Scott managed a bit together time today, you probably need a wee few hours to yourself more than ever right now. Was laughing when you said "braw frock"..and that you explained it to Susan..that is such a fife word ha ha!! It would be great if we could get the chance to meet up. Here's hoping. Hope your wee mum is comfortable tonight.
ps - what is it with the Wii thing? Amber just smashed Paul at bowling..and she's 4! xx

Diane - Thinking of you too going through your difficult time. xx

Gayle - Hope your all okay today. Would be great if we get the chance to meet up so fingers crossed. Of course you get to meet the lovely Emma this weekend..cant imagine much sleep will be had when you two get going! xx

Becca - Difficult times for you at the moment pal. Hope youve made a decision on what to do about work then thats one less worry for you and you can be there for both your mum and dad. Whatever is in your heart is totally the right decision. speak soon. xx ps - went to see Ghosts of girlfriends past...an absolute chick flick if ever there was one, but it was actually really funny and Matthew McConnaghy was extremely hot! a nice bit escapism for a few hours anyway. xxx

Also, so good to hear of christie doing so well and also Dianne's daughter too - amazing - keep at it girls. xxx

To everyone else - much love to you all.

Well no changes here at the moment - we managed to get my dad out for tea last night for an hour and a half so major accomplishment - he was floored when he got in though. Walking is still so difficult as his leg is still huge and he gets knackered even walking to the loo. he's stil on 8mgs dex but I very much doubt we could lower them now. Back to work for me tomorrow girls and I am so wound up and worried...11 months is a long time to be off and i feel like im needed here more than ever right now. Luckily my work is fab and very flexible with me...but I'll still feel like the new girl tomorrow!!

goodnight folks...although i'l probably still be awake at 3.00am
xxxx