AM I THE ONLY CARER WHO NEVER SLEEPS!!!!!

FormerMember
FormerMember
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Well here i am again at 4.30 in the morning and i can't sleep yet again!! My husband Darryl has terminal small cell cancer and, at the moment is going through a really good phase. Which, i would have thought, would set my mind at rest and enable me to sleep. But no, here i am again having had 2 hrs sleep tonight wide awake with mad thoughts running around my head!! This is driving me crazy and i just seem to be on auto pilot all the time. Darryl is 44 years old and we have been given a prognosis of a 2-3 year life span for him. I can't seem to let go of this thought, and maybe part of me can't sleep because of that, as i feel if i'm asleep i'm wasteing precious time!! Darryl is sound asleep and resting well, and if i stay upstairs next to him listening to his breathing, i keep thinking is this the last time i'll ever hear that and end up getting so uptight and worried that i find it better to just get up again. So i wander round the house do a few chores, have a hot caffiene free drink and will myself to sleep all to no avail i might add!! hahaha surely i'm not the only carer who never sleeps, or am i????? any comments gratefully recieved. Take care my friends and hope your all sleeping well. love and hugs mel xxx
  • Dear Teresa, having had so very much (unfortunate) experience, there is a drug which the powers that be were thinking of adding to the classic ABVD treatment, it was an experimental 'trial' drug that Caz had, I'm not sure if they are now going to consider adding it or not, you might ask her team, it is a Medorex drug, listed as MDX060, no name of course.

    Do you yet know what Michaela's staging is? Caz was 2a, and she had 6 cycles of ABVD, taking almost 6 months as there were 2 weeks between chemo, each cycle is 2 sessions of chemo, sorry, it's hard to explain.

    As you know, though, everyone is different in the need for anti-emetics, Caz just kept quiet instead of asking to try a different one, so felt 'pants' as she explained, for the first week each time...

    I do feel for you, it is so very tough seeing your child go through this.... with loads of love and hugs.....

    Moomy

  • FormerMember
    FormerMember
    My dear surrogate mother hen Karen,

    It's so good to hear from you and that alls well. Iv'e missed you all so much just couldn't keep away!!! See they say you can't keep an old dog down! or should that be an old bird cos don't want people to think i'm an old dog! lol

    You said Will had a hiatus hernia, how was it treated and any info you have would be much appreciated if thats ok with you, and Will of course?

    Well it's still flipping snowing here and has been since bout 6am, flipping weather! Mind it's Essie Doodles first lot of snow and he was really funny in the garden he kept trying to catch the snowflakes!!! I think he thought they were a toy or something. lol mind you he's snuggled up on his bed in front of the fire now as think poor little mite got a bit cold. I will have to buy him a little coat to keep him warm. What do you think about a leather jacket with studs? Very rock dog! hahaha

    I really do appreciate all the support you have given our little chickies and you enjoy your gold star cos you deserve it! maybe start giving out prizes soon??????? eeeeeeeeeeeemmmmmmm let me think how bout first prize week in a hot sunny place( iv'e never been abroard haven't even got a passport so no point me winning that one!! ) perhaps second prize could be a years supply of anything chocolate( maybe even chocolate Westlife figures if you all insist, or West life covered in chocolate!!! ) Third prize maybe a years supply of booze of choice!! Think i'll have the third prize, mind might have to fight Mick for that!! hahaha

    Oh how i have missd being about but i'm in a good mood today which makes a change from recently so it's good to be back to look after you all!! Guess who's back, back again, mel is back tell your friends, mel is back mel is back!!! Eeeeeeeeeeemmmmmmm wonder where i got that from? Me thinks Daleys been having his music up to loud again! lol He's a right hip hop fan and don't i know it! lol

    Well babe i will say bye for now hope your having a good day with your boys and Will love and hugs mother hen mel xxxxxxxxx
  • FormerMember
    FormerMember
    Hi Juls my little chickie,

    Iv'e also left a message on your thread in support of Donna. I hope these messages give her some support and comfort when she feels ready to read them.

    Thank you for letting me know of someone in need, as i'm always willing to help anyone.

    Take care babe love and hugs mother hen mel xxx
  • FormerMember
    FormerMember
    hi teresa honey

    poor michaela going through the mill aint she? poor little mite, the sooner they start treatment the better eh? she will be fine with all the love and care around her, and all the love from us here too!!
    it must have started to sink in with her now musnt it? as you said she can snap away it doesnt matter does it mate?
    how lovely your sending your mum flowers, she has been through a lot too and you have, thats such a lovely thought and bet she will love them.
    hope michaela a bit brighter when you go up later, give her a great big hug from me wont you?

    i think mick should try westlife and take that, he would probably love listening to them eh?, sorry mick no slaps!!!!!!!!!!

    i have 3 boys mate, ryan, kieran and danny, and wills my hubby bless him, hes lovely!!

    how great that michaelas work and everyone are so understanding (so they should be), but some people are not are they?

    you probably felt safe and secure being at your mum and dads house yesterday with everything thats going on babe, hope you managed a good sleep there.

    thank you for making my head big, i wont be able to get out the door now lol, that was lovely of you, i just hope i can help and support you, i will try my very best, but mama hen mel has the nac of wise words doesnt she?

    love the digs about liverpool, keep them coming, lol hee hee (sorry kate babe!!)

    anyway hunni, have a good visit with your babe, speak soon
    love and hugs by the bucket load, oh and bugger the watershed lol french firemen and there shiny helmets oooher!!!
    chickie karen (bobey lol) xxxxxxxxxx

  • FormerMember
    FormerMember

    Dear moomy, thankyou for your message

    They think Michaela is at stage IV but wont know for definate until tuesday when the specialist and consultant comes up to see us once they have got the final results of the 2nd slide. I have written down a list of questions to ask the Dr tommorow (they will prob think I'm a right pain in the arse) it just seems to me (and my darling mum) that she is getting worse so needs treatment sooner rather than later!! I hope all goes well with Caz this coming week, she sounds very strong and positive just like her mum!!

    Take care and love to you all, Teresa XXXX

  • FormerMember
    FormerMember
    Hi Mick,

    So good to hear from you and you could never offend me in anything you say cos i'm a tough old bird you see!!!

    You really are one of the maddest people on here so you will fit in well with us girlies, cos we can be just as bad!!!

    Your be surprised what we get up to in the early hours sometimes!! I hope you don't blush easily????????!!! hahaha

    You done a good job of keeping the girlies in line, i have a job sometimes as they get a bit over excited so it will be good to have a man about to give me a hand!!! lol

    I hope you and your lab are having fun! is it snowing where you are? It is here and has been since about 6am and hasn't stopped yet!!
    Think i may need a shovel soon to get out!!

    Well my friend and father rooster hope to hear from you soon

    take care mate love and hugs mother hen mel xxxxx
  • Dear Teresa, I honestly am not sure if the staging has much to do with success, just how much chemo they give, so don't worry too much! I just hope that for all your sakes they can start soon, give her a big hug from me....even if it has to be a cyber one! love.. H xxx

    Moomy

  • FormerMember
    FormerMember
    hi mama hen mel

    mama mel is back mama mel is back, ive told all my friends mama mel is back............ lol i think we all gone mad lol, youv'e got daleys hip hop and we got ryans hip hop here, he plays it really loud, i must be getting old lol
    we will call you old bird, not old dog, cos your no old dog babe lol hope u understand, that was a bit of a mouthful.. oooher just realised how that sounded lol (sorry teresa, bit bad before watershed lol)

    so good to have you back, have been laughing at your post, you are funny and make us laugh!!

    hope you feeling bit brighter this afternoon, you sound it, so thats great.

    when will had hernia and ulcer, they put that thing down his throat to show what was going on, he was being sick and sicking up blood, so they put him on tablets to sort everything out, it all worked, and now he takes only the omeprazole which helps with the reflux/acid.
    he said he knows how you feel and its not very nice and wishes you good luck to get it sorted soon.

    glad darryl and the kids are all well and good luck for darryl app, but will speak lots before then anyway.

    hope your relaxing and resting up, i will send you all a roast dinner if that helps lol

    i would love westlife covered in choccy uuuummmmm yes please, sorry i mean choccy westlife figures lol

    i have travelled a fair bit, so would love the holiday abroad prize, will you send it soon please lol barbados will do hunni, but dont spend too much on it will you lol

    think you would have to fight mick for the booze lol

    essey doodles bless, me thinks a man u coat would look lovely.... what do u think lol
    taz loved the snow too, chasing it round the garden like a looney, we all mad in this house even the dog lol

    anyway honey, so glad your back, we all luv ya tons
    speak soon, tons of luv and hugs
    love chickie karen (bobey? lol), oh and french firemen with shiny helmets lol oooher! xxxxxxxxxxxxx
  • FormerMember
    FormerMember
    My Dear Chickie Teresa,

    It's so good to hear from you again!! You won't believe how much i have really missed you all!!

    I'm sorry that Michaela is so poorly and hope she gets her treatment started soon, as thats the worst part is the sitting around waiting for something to happen isn't it?

    Send my little surrogate niece a big hug and kiss won't you, along with the happy get well meelymoo fairy dust!!!

    I hope you are looking after yourself, but i know you're strong and will cope with a smile on your face even if you are cracking up and breaking down inside, cos thats your way!! I love you babe and am here for you always and promise never to go away again! I feel a bit of a s**t for that so i apologise to you for that sincerly from the bottom of my heart!!!

    Let me know how things go with Michaela won't you and i wish you both good luck with everything and hope all the treatments go well. Most of all don't forget we are here for you both even if it is by internet. Don't forget you got my phone number so ring me anytime you need a shoulder or someone to talk to personally instead of online.

    Well it has been snowing here since 6am and still is now! Think i'll need a shovel soon to get out the house!!! Maybe i could dial 999 and get a hunky fireman to come rescue me!! lol Don't get me started on that again! What with the big hoses and shiney helmets, well well what have you all been up to in my absence????????
    Don't think Mick has been discouraging you all either, wondering if he's a good role model now!!! lol

    Well as i said to karen guess who's back, back again, mel is back, tell your friends, mel is back mel is back!!! I think Daley has been having his music on too loud again! He's into hip hop not sure where that came from but him and his homies as they call each other nigh on live here!!! Their good lads though but make me feel like a midget cos the're all so tall!!
    I remember a funny day once when daley was about 14 i found out he had bunked off school with one of his mates jay. Well there was me the midget mum looking up at these two strapping lads trying to tell them off and all they did was keep laughing, whcih really annoyed me, so i asked them what was so funny and they both said it sounded so funny a little midget looking up at them trying to lay down the law!!! LOL Well i tried didn't i and i must admit it did look a bit funny!! I'm only 5ft 2in and daley was about 5ft 9in then and jay was over 6ft!!! Still boys will be boys i suppose!!

    Here i go again doing a you and diversifying!!! lol(no offence meant of course) I think that is catching so all i will say now is

    I'm a cat, i'm a kitty cat, with a meow meow meow meow!!!! Think iv'e lost the plot now must be coming back on here!! lol

    You take care babe hope to hear from you soon big hugs and much love mother hen mel xxxxx
  • Mother Hen Mel, good to see you posting on here, it is not good to have you poorly! I hope you will get totally better very soon!

    Moomy