We Talk Brain Tumours

Y&Y,  this is such a sad post, thankfully though Mark is pain free - I hope you get through today as best you can with all the family around.  Thinking of you, take care xxx

Good morning all,

Y & Y,   as Mandy says,  thankfully Mark has no pain. 

Our thoughts are with you. Doreen and Martyn XXXX

Morning

Sue, and may I say many more old in the tooth memberships still available! 

Bet Paul makes many a person's day with the flashing routine - though I appreciate that it may not go down so well with the girls!  It reminds of when P had just had his op and it had all gone wrong, he was so confused - they had left him naked in the bed so that if he needed to do 'number 2's' he could (don't think this is actually supposed to happen but ...) - all Peter wanted to do was show everyone who turned up what was beneath the sheets - funny as it was it was alarming too that he didn't care nor understand - so I was on holding down the sheet duty at those times!  Will the consultant be available to see - I am impressed if he is and I hope so as your mind works overtime with those nagging doubts no matter how much you try and reason with yourself.  I'm sure someone will post soon what RT was like initially and maybe this will help you get through til Monday.  You're posts amuse me Sue, so never stop with the epics, I need some competition after all!

Well, P being back from the hospice is great, I missed him. But things aren't as I hoped they'd be, maybe early days, but he seemed so well in the hospice.  Yesterday wasn't so good but then he was overdoing it all. However, he woke and got up at 7 and was back in bed by 9 after having fallen asleep in the lounge and having a choking fit - I feel deflated I think, maybe I'd hoped for too much and I did wonder that the hospice was a 'warped wellness' as he didn't have to do anything nor could he obsess about things as everything was done for him - hoping it's just a settling back into the way of things again but also wondering if he was putting on a damned good act which he can't keep up as I know he was worried if he told them anything they would keep him in for longer.

Snowing, freezing day - should we be blaming you Miggins, some things we don't need to share you know?

xxxxxxxxxxxxxxx

Allison,  you give our best wishes to Dad.   As they sang in Chess,  I feel 'I know him so well'. 

I'm reverting back to Martyn when I sign off,

Miggins  is very suitable for CH  and  Queenie of course ideal for Mandy,   BUT   Darling for me???

I think not.    Best wishes to all,

Martyn XXXX

As long as it's not the Flanders Pigeon Murderer XX

Yin and Yang, Just to say thinking of you and sending strength.
Love,
Miggins xxxxx

Yin and Yang,

Thinking of you lots. Take care and God Bless.  Sally E

Dear Y & Y

I am so sorry you and Mark are at this stage of the journey. It is so unfair and to be right on Xmas somehow makes it worse. Remember to take care of yourself and enjoy the cuddles.

Love and hugs XXXXXX

Y&Y,  thinking of you both, i hope Mark is as peaceful as Lee was and just keep cuddling i was still hugging Lee when he finally slipped away.  Love to you bothXX

Lee's funeral is on Monday at the Crematorium and from what we've been told there will be hundreds there.  We live about 5 minutes away from Ennerdale in the Lake District and this is where Lee as asked us to scatter his ashes as we loved to go walking there.  Been to see him 3 times now at the parlour of rest to see if this helps it sink in that he as really gone, but no good still think he is going to walk through the door. 

I can't believe how quickly this buggar of a disease finally got him in the end ( 2 weeks) but at least he is at peace and free from it all.

Love to all

DonnaXXX

Hi Mandy

These men are very good at putting on an act  to try to convince everyone they are doing ok. My husband has been doing it throughout his illness. Our doctor came to our home yesterday and spent some time with G and myself. He is very weak all down his left side but he was trying to convince the doc that it was an old knee injury that was causing him to be unbalanced. She explained to him that it will be the tumours causing this to happen, but G didn't want to hear that. He then got up and headed for the sink and proceeded to fill it up and play with the water. I can see a rather hefty water bill approaching!

I do believe this acting does wear them out and once they get back into the comfort of their own surroundings they feel relaxed and tend to sleep it off.

XXXXXX