We Talk Brain Tumours

Crumbs! they don't make things easy for the 'old folks'

Took me so long to negotiate these new sidings that my shift has actually finished! Will try to get back later. Not been able to read back, no bad news please!  Martyn XXXX

I'm finally back too. Have been away from the PC for a few days and couldn't do with all the hassle of trying to find the thread again until I had some peace and quiet, after trying at the beginning of the week.

I too haven't yet had the chance to catch up with all the posts on here, but will try to do so.

Naomi, much love to all of you, this journey is so awful, but so relieved you are all there for your Dad xxx

My Dad started his chemo and RT on Mon and so far is as ok as can be expected. I can't visit him as the curse of my job has struck (as I feared it would) and have had the most awful cold all week, still coughing now. I'm hoping to get to see him next week, still have so much to say and do. Apparently during one of Dads treatments, he picked up a magazine and read about what happens towards the end of this journey-and has been panicy and destressed ever since.

Wishing you all a peaceful weekend xxx

Sadly, I am not impressed with the changes and the style doesn't make replies as personal i.e. the background, box not defined like before and we have lost our status on the front page!

I feel that this is the time for me to leave the site once and for all.

If anyone is wanting my advice and support, please do not hesitate to PM me as it should tell me in my email box.

Sending all of you my love

take care

Ann x

Back home after another emotional day at the hospice. Am going to bed fully clothed so I can go straight back if we get "the call". Dad almost certainly down to his last few hours now. He was having some twilight moments today, where he is neither unconscious or conscious but instead in excruciating pain so he now has five different drugs going through his driver.

At 7pm today the dr came in and told us they want to sedate him much more heavily so that he won't be able to move his eyebrows/squeeze our hands at all. We all agreed it was the kindest thing to do. As each of us kissed him, he tried to open his eyes (we could see his eyes moving beneath his eyelids).

His breathing alternatives between really fast and then nothing for a few seconds or really slow and noisy. No urine output since Wednesday. Looking quite yellow now.

I am torn between wanting him to die so his struggle is over and wanting to hold on to him forever. This has been the worst experience of my life and yet it seems so surreal.

Tomorrow marks a year to the day since dad's first seizure. I have a feeling that will be the day he leaves us too.

Love to all.

Naomi.xxx

Ann  Please don't leave the site.  We have some firm, honest friends here and we hate to see people leave. We need you here, not elsewhere.  Things will get better with the site, or we'll become better at coping with it.

But all of us have coped or is coping with far worse than this.

Please, stay.

Naomi.  My heart is with you through these coming hours (however many of them there are).  I wish you peace and comfort.

Thinking of you Naomi.Many HUGS xxxxxx

Hi - found you all - my e mail updates just stopped and then tricky to find you all. Naomi - lots of love to you and Pete sounds like you do too and I haven't read back very far so sorry if I've missed someone.

Wendy XX

Dear Naomi

be strong my lovely Its sounds like hours/days. Peace will come soon by the sounds of your posts.

Sending all the stength I can muster. love jmd xx

Ann B things seem to be gettuing quicker now so please don't leave.

Naomi, Ihope things go quickly. We Have been waiting at sanme stage for over a week now and it's soul destroying. I've decided to tell our 13 yr old daughter to just say goodbye tomorro and not put her thru anymore upset re having to stare at a comatose being who once was her larger than life amazing dad. Idon't know what else to do cos she is so distraught when she visits the hospice and gets no recognition. What do we do when someone is so determined to hold on? I can't believe how he is still holding on against all odds. He can't even open his  eyes but he won't let go. All G keeps saying is 'sorry' and all I want is for him to be at peace.

Thoughts with you all.

Ange xt

Ann, I followed your story before I was brave enough to join this train, you gave such inspiration and you continue to do so, your support and knowledge are valuable to newbies and I hope in some way you have received some support from us too.

Naomi, - huge hugs and sending love to all the family.  

Huge and strength to everyone else too 

Joanna xx