We Talk Brain Tumours

Hi Denise

Welcome to the madhouse! We look forward to sharing a glass or two (both virtual and real) with you and comparing notes on bird seed.

With much love and wishing you strength.

Pam

x

Sorry I seem to be posting a lot today( I need to get a life) , but I think that BTs do exaggerate whatever traits you do have to start with...a bit like Dementia ?

Pam..I too used to face huge I tune bills for triplicates of every film, album ,books..whatever. Texts and emails were sent in the middle of the night in answer to ones that had been received and answered a year before....Usually in a fictional language......with responses along the lines of "who the **** is this?"

Cx

Very good Cathi, that's another one for the book...!

I'll think I'll join you all in a glass of the vino.  I have a full tin of Quality Street on offer.

A tin of Quality Street? They go nicely with a nice Pinot! I'll swap you a couple of glasses for some gold toffee buttons Pete. 

Cat - don't worry my lovely, I have been on here practically all day. If I hadn't I would surely have been insane by now.

Tony has been asleep for most of the afternoon. I have just woken him with his evening medication and a pizza snack and, from the mumblings I could understand, I actually don't think he remembers today at all. Which is probably for the best, means he has less to stress about and we can start the day tomorrow all fresh, new and positive. 

Pete I am taking your advice and taking him to see the GP tomorrow. I spoke to her and she says she isn't prepared to prescribe anything to calm his nerves without Tony being completely aware - which is absolutely the right thing.

Fingers crossed.

Pam

x

Oh Pete, I can trade wine for the purple ones??.

Paul loved to watch the birds and we moved the feeders around so that he could see them from his bed and chair.  He became obsessed with buying a sculpture just before he died, even he laughed about it because he couldn't understand why he had to have it.  

Pam - hope your GP understands that both you and Tony will benefit from some help.  hope the visit goes well

enjoy your wine everyone, and lets hope for a peaceful evening

Jxx

Ha.  As long as I can keep some of the hard centres to myself, you can have what you'd like....!

Pam.  If you can, it might be an idea to talk to your GP without Tony there at some point soon.  There may be a concern that he might take offense to being told to take mood altering drugs.  It also would be an opportunity to talk about things without fear of Tony having an adverse reaction.

A Pinot sounds like a good proposition.

Well, the saga continues.....

He is now awake and, despite my best attempts to explain that it is not acceptable under any circumstances to do what he did today his response has been to request that I take him to the GP to ask her to find an alternative carer. He doesn't want me to care for him anymore as I am abusive apparently. I shouldn't have tried to discuss it to be honest, he's just not making sense and I'm so exhausted I'm not dealing with it very well at all and am probably being far too emotional.

Whoever coined the phrase 'Stop the world I want go get off' must have been a full time carer.

Thank God for Pinot Grigio, rubbish television and my best friend whose ear I bend mercilessly.

Pam

x

Pam, you can't take it personally.  tomorrow is another day with different challenges.  Trying to reason isn't going to work.  Maybe alternative carers would help.  Probably not what you want to hear at this stage but they can come in and give you time to be relaxed together  I left it very late and only only got a few weeks of it but it was so worth it.

Pinot helps, 

take care and hope you get an empathetic response from your GP

jx

Pam - big hug to you, mum got very snappy and very blunt, mostly with my father, she started to swear a bit too, not bad bt still swearing, it was just a phase though and passed eventually.

Oh and mum started ordering expensiv emake up and creams from QVC online and then new shoes, new clothes and obsessed over finding a green table runner (for a glass table she wanted to smash!)

Pete - tonight I will offer you Rioja for the strawberry or orange creams.

Love to all,

Hi Denise, welcome and sorry you are on our train.

Does your hubby have seizures?  Do post and get things off your chest honey will try and help and support u along with everyone else. 

take care  Julie xx