We Talk Brain Tumours

Hi Hazel,

Good to see you back again.  I hope that things aren't too bad for you just now.  Christmas will be the kicker, but it's only the one day.

I too have found things easier than I ever thought possible.  I have been to places we enjoyed without going into meltdown and am forging ahead with all the notifications and paperwork.  Funeral all planned (Tuesday), just  not quite sure what happens when everything is dealt with and "normal" life has to be resumed.

Hi Hazel,

sorry to hear of your loss. I am quite new to this site and so I, too, am still trying to find my way around!! lol

Take care.

Pilly

Hi Ann and all.My Dad has coped pretty well after my stepmum died.Theyd been married 34 yrs.The paperwork certainly kept him busy.I had to go home (200 miles away) the day after the funeral but Ive emailed him everyday since.Both of us are not good on the phone.

My Dad cleared Eves clothes out very quickly.Maybe thats how men cope I dont know.HUGS to all xxxxx

Hi All,

I too appeared to be coping well with all the formalities, getting out and about and even went back to work after 5 weeks. Then after 3 months a frozen shoulder and an acute attack of cervical spondylosis  I had a meltdown, probably caught me when I was at my lowest and in a lot of pain, so I was off work again and this compounded my low ebb as I do enjoy my work. My good friends said they were expecting me to to succumb as they said that I had been too good!

Well am back at work again for last 3 weeks and getting my act together, but am aware that there is always a chance of relapse. Have attended a counsellor on 3 occasions and this helped and she explained there is no quick fix and  that the door is always open for further sessions if it all goes pear shaped again in my head.

So what I am saying is this... be good to yourself and take help when offered. There is no shame in not being able to cope especially after what we've all been through.

Love to you all

Hazel xxxxx

Hi Pete and everyone else. My names Rachel; the originator of the E-Petition. First I'd like to say how sorry I am on your loss Pete, and I also send my sincere condolences to anyone who has lost a loved one.

My husband, Shawn, passed away on July 7th, just a few months ago from a GBM. I know I should have posted the petition on here, but to be honest my head, so to speak, has been everywhere.

If anyone has a social network site that they belong to I ask, please, share this link

http://epetitions.direct.gov.uk/petitions/17419ASE

I have a meeting set up with a local MP who is very keen on getting the awareness raised and also agrees that the lack of funding is dire and is willing to do whatever he can to help, including discussing the subject in Parliament.

I would leave a link to my Facebook page, but being totally inadequate at using computers I have no idea how to do it.

Much love and regards to all.

Hi Rachel...Welcome to WTBT.

I  lost my husband , Mark to this horrible disease on the 12th July this year so I do know how you feel. I happily forward your link to everyone I know. The more focus we have on this the better. 

Love to everyone on the Forum..I was about to move us up last night and then I noticed there was a burst of activity due to the Wine and the Black Magic.

hugs.

Cathi x

Hello Rachel.

I forget where the link to the petition came from now, but I've spread it far and wide on Facebook (feel free to send me a friend request there if you'd like) and it's been shared further by many of my friends.  I hope that I've managed to help out in some small way.

Well, it's been a week now since Ali's passing.  I don't know whether it's been a long time or a short time since then.  To be honest, time ceased to have any meaning for me back in March and there's still no difference.  A day is still a day.

I've never been apart from Ali for so long.

Hi Rachel,

Thanks for setting up this e-petition and so sorry Shawn was stolen from you by this hideous monster just like my husband was stolen from me 3 weeks ago.  I will make sure the link gets posted on the band's website / facebook.

With love, Debs xxx

www.justgiving.com/steveharrisfoundation