Hi I’m new to this group, I was diagnosed with EHE July just gone and am post surgery after having my tumour removed and vessel reconstruction, surgery wise I’m doing amazingly considering only 5 weeks ago but am really struggling emotionally although I have fantastic family support I don’t want to burden them with my fears and thoughts as I can see the worry in their faces enough as it is.. EHE is known to reoccur so I’m constantly going to be on edge, and I’m scared of what my future holds . I just need to vent and sob but I’m afraid if I allow this then I’m not going to keep strong to cope xx
