Well this roller coaster took a dip. Other half was admitted to hospital with committing stuff I'd rather not remember after he had faffed around with I'll call for help tomorrow scenario then it was tomorrow and tomorrow so he was pretty poorly by the time the Dr's got hold of him.
After being nil by mouth for a week and seeing multiple consultants all with different opinions from radical surgery to remove bowel and tumours to let's wait n see. They went with trying to control with diet as things started to move after 10 days. Dietitian prescribed food supplements and put him on the 4 stage diet plan which basically starts with liquids to very runny to slop to baby food to not so runny slop. All of which is zero fibre hi protein n calories.
We thought there might be something on the Internet to guide us better but there is nothing. No cook books or even suggestions. So I'm asking if anyone has experience of this and can point me in the right direction of something manageable that doesn't leave me a gibbering wreck thinking I'm gonna kill him
We did the bowel cook book thirteen years ago. Off the shelf products have changed since then.
Smoothies are good for nutrition. Porridge for fibre and filling. Veggie soups, mash ripe bananas to make milk shake. Husband loves tomato soup with an Oxo cube -beefy tea. Anything with honey. Shredded wheat with warm milk.
Check with consultant to see if lactulose would help. You've probably done that already.
It's all trial n error. We just had a blip yesterday and thought he had the obstruction back so he now back on level 1 (anything that resembles dishwater). He been told to have hi fat hi protein yogurts with no bits in. But I can see a time when they get boring. He can't have anything with wheat or grain one portion of veg a day and one portion of certain fruits. Shopping is a night mare. Made some braised meat in gravy but that was liquidised to within an inch of ots life. I feel sorry for him but its got ro be done as the next step would be a peg feed and a colostomy so this has got to work
The information given online even by the NHS and cancer centres varies hugely so I agree it's hard to know what you're meant to do.
My husband had 2 X stents in his colon upon diagnosis as he's terminal and they won't and never will operate. So we've been trying to deal with this for 2 years on a low residue diet.
Here's what may help:
Fibre is bad, you don't want bulk formation so even if you have blended something, it can be obstructive if it is too fibrous.
High calorie and high protein shakes are the way to go. You can create your own, bananas, milk, some fruits honey tbs of olive oil, smooth peanut butter blended.
Other than this there really isn't much you can do, you're not going to kill him. Just don't feed him for example high fat content foods like fried chicken as fat is hard to break down, and don't feed him for example steak. He needs smooth mashed potato maybe even mashed carrot or pureed, yogurts, smoothies, he can have white rice and white pasta well cooked with sauces too like pasta bake lots of carbs with melted cheese on top. Custards, tinned rice pudding etc. it's not a great way to live but the blockage is worse than the diet, it's tricky and hard o get consensus from experts on how to deal with this but it won't be you that causes a bowel blockage and I think from your post, you know what he needs and you're just afraid, and I've been exactly the same for 2 years now too. All the best
Thank you for this. Its good to know we arnt the only ones.
No, I've really struggled to find others to talk about this with. So when I saw yours I was surprised. It's so confusing. I wish there were some approved guidelines ie from NICE or somewhere. Do you have access to a dietitian? It might be worth finding one if you can afford it. At least there's some authoritative voice rather than relying on different internet sources. All the best
We have a dietician but nit due to see them again till December when they review the fortisips. Think I'm getting to grips with the main meals now - batch cooking a lot of sauces and casseroles. It's snacks that's causing difficulty. There is only so many yogurts rice puddings and custard you can eat. And it's quite difficult getting the full fat yogurts to keep the calories going. 4000 calories a day is hard to find. I've started making some cheesecake without the base which he enjoys but getting to the point where he craving texture. He still working for now bur fitting 6 meals in during work is also quite trying then don't get me started on dropping energy levels
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