Apologies for this - its been a bad start to the day and I just needed to tell someone.
Just dragged my husband around everywhere I can think of to get help with his obturator prosthesis (after a hemi-maxillectomy) which has stopped fitting - I think this could be down to growth of other tumours in the area, or inflammation from immunotherapy. Without a properly fiiting obturator he cannot talk, eat or drink properly. He has an appointment for next Tuesday to get a new one fitted, but we can't get help any sooner. Dentist tried, but couldn't help. Hospital have no staff competent to make adjustments who will be in before next Tuesday. Talked to 111 guy who ended up recommending that he pop into our local pharmacy - he really didn't understand the problem!
He has an appointment tomorrow to prep for next round of radiotherapy, which we have been waiting too many weeks for already - for which he needs the onturator in place.
Just feel like crying! Worried that by the weekend we'll be in A&E needing to get him tube fed. Really don't know what else to try.
oh what a nightmare. Can you try reaching out to your oncologist or even via his secretary and explain the situation?
Hope you get this sorted soon,
Hang in there,
Love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Trying oncologist, though he's on holiday too. This morning was only the start. Radiotherapy hospital phoned to cancel his radiotherapy prep appointment, because it will be re-radiation and they want him referred to a bigger hospital with more support to deal with potential complications... Hoping tomorrow's a better day!
Cancer treatments March 2021 - October 2023
hope today has been a better day.
love n hugs
Wee Me xx
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