Follicular non hodgkins cancer

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My daughter was diagnosed almost a year ago and is on Watch &Wait. She feels unwell but also that she has been left to get on with it and is fobbed off when she phones her cancer dept to say she is in pain and exhausted. How can I help her. We don’t see the specialist until the end of the month. This will be the first visit since February. How do we know the cancer hasn’t spread since then. My daughter feels very alone and frightened. Any advice would be welcome. Thanks