24/7

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Hello everyone,

the title says it all, this is a thread for everyone at any and all hours of day and night, to post, help, laugh, cry and anything in between. There will be no nasty posts, everyone who joins in will be gentle, considerate and kind to everyone else. Hugs to all......xxx

  • FormerMember
    FormerMember

    New, and would like a shoulder to cry on please :'(

    My BF of 8 years was diagnosed with originally Epilepsy when he had a seizure almost a year a ago now, An MRI 6 months later, gave him a DNET diagnosis.

    The 'follow up' MRI 4 months later (in Feb) told us that it is not a DNET and it has grown to the size of an egg.

    He has since pushed me away and we are no longer together. Can anyone advise me how I can support him? He goes in for a 6 hour 'de-baulking'  awake craniotomy tomorrow  and I am not with him, just his Mum and sister are.

    He is my rock, and my soul mate, I feel very helpess, sad and depressed and I appreciate this is nothing to what he is going through :'( He's just turned 30 

  • Hello and welcome! 

    Sorry to hear your problem, but this room is a place to pop in anytime, any day, and know that it will be comfy, clean, warm (or cool if we get hot weather!) and there will usually be someone around before long to 'chat' to......

    sending you a hug xxx

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    Hi sweetheart

    I was so sorry to read about your friend but you have come to the right place for a hug & a shoulder to cry on

    I'm sure your friend doesn't mean to be cruel & push you away & out of his life but sometimes when we're really scared we take it out on the ones we love the most,i know i did when i was first diagnosed hopefully if you give him a bit of time to get over the shock & the surgery he will let you back in & help him

    You're always welcome to come in & everybody here is helpful & kind,i should know as i've been needing support & hugs myself recently

    I'm sending you love & hugs

    xx

  • FormerMember
    FormerMember in reply to FormerMember

    Can anybody tell me why getting into a packet of biscuits is like a flipping test on the Krypton factor,i have swept up the crumbs & put the broken biscuits out for the birds & what's left of the malted milk in the biscuit  tin

    xx

  • I think the biscuit-break-in puzzle is just to confuse us! I guess it wasn't one of the packets that has a sort of opening string thingy beneath first and second biscuit? Cuss them! 

    Hope you had at least one complete biscuit? 

    Hugs xxx

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    No,it's one of those with the little black bit on one end that's supposed to make it easy to open,ha, that's a laugh,i usually get a knife to those but i couldn't be bothered to go back for one,i managed to save most of them but a few got away & that upset me as they're my favourite

    Hope you're feeling better now mummy

    xx

  • FormerMember
    FormerMember in reply to FormerMember

    Hello there, just having a look around. I used to pop into chat room from time to time. It looks like there is good chat and support in here.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi all just cuddled up in bed after a horrid cold, wet and windy day today.

    Felt sad and lonely today. 

    Hope you are all ok xx

  • FormerMember
    FormerMember in reply to FormerMember

    Sorry you felt sad and lonely and there was no bright sunshine to cheer you

  • FormerMember
    FormerMember

    So I really could do with some advice and to know what I'm looking at my dad has been diagnosed with cancer they found a tumour in his neck and its malignant in the meantime they also found enlarged lymph nodes in his area by the vessels but they said lungs are clear he's had a biopsy of what they could get from from bronchoscopy and said its cancer also found a lesion on his thyroid gland which he has to go and have an ultra sound and needle biopsy first. The chest area they said originally his lymph glands were abnormal went to hospital the other day with him and has now called them tumours but sending him for EBUS to test other tumours on the lymph glands they aren't starting treatment yet until they work out if something's primary or secondary I did ask the question as everything for me pointed to B cell lymphoma they said its a possibility but hardly unlikely has anyone experienced this as I really want answers for him and us he now is struggling to eat and sleeping all the time but I think this is stress of the waiting and not knowing. If anyone has experienced similar symptoms or know anyone who has can they just give me an idea of what we are looking at please?