For those with a warped sense of humour WARNING- no punches pulled here

Little My is off to Sweden! Think this forum may be a little quiet for a time. Will give me time to read what you naughty people get up to.

One to keep you all going for a little while. My first chemo regim was ABVD. Not to bore you too much I had had a 22cm tumour removed from heart and  lungs, and blood vessels were also affected, but the cardio thoracic consultant was confident that he had taken most of Murraymint (tumour's nickname) away and 6 months ABVD was belt and braces stuff after diagnosis of advanced Hodgkins.

Anyway, move on 6 weeks from op and I start chemo. Very chatty nurses welcomed me and showed me to my seat. Incidently, lovely big windows and view :-). My alloted nurse came over and explained what each drug was etc. then warned me that one sometimes made you tingle DOWN THERE! Some apparently described it like an orgasm.

I was lovely and calm and chatting away as she was administering each drug......then it happened! Oh my......I started to pass out....buzzer sounded....nurses rushing around....bedhead pushed down...curtains pulled round. Well, if that's an orgasm my hubby must have been doing it wrong all these years (thank goodness)

Upshot was that after that, every fortnight for 6 whole months, they had to administer one particular part of this chemo at half speed. And for those of you on this site who have a warped sense of humour (all of us!!), yes I had a longer but less intense experience

Cancer is a funny old game xx

Oh yes, How I remember the 'tingling'. I used to feel myself flushing with it. My face would go beetroot and really hot. What a horrible sensation. The first time I got it it was a male nurse administering the drugs. As for being like an orgasm........................... you can only imagine what some people are on about????  Guess, I've never really lived lol.

Thank goodness I'm by all that, that's all I can say lol.

Christine xx

i don't know.... barely out the door and the tone has certainly be lowered! Can't leave you for 5 minutes can I???

Poor old Dave will be choking on his tea and goodness knows about the other boys hiding behind their Model Trains Weekly...

Just popped in to say thanks for all coming out and lining up on the M5 yesterday to wave me off... next time, do you think you could not clog up all the lanes at once? Not that I'm ungrateful or anything... but it did take quite a long time to get to Devon... and before you ask... I know Wales to Scotland via Devon sounds odd...( I did say I had no sense of direction.....haha) ,, there was some method in my madness somewhere.. honest...involving sons and cars and things....

Anyway, got up at 5am and left lots of time for all eventualities and Mr S Law etc and of course, Sod's Law,  nothing went wrong so we got there ages in advance and nowhere open till we got on the train so had to sit and wait for ages with no cofee harumph!

Trolley service got off half way up and the next trolley didn't come on (no one turned up he said....) gasp, pant, dying of thirst, no sandwiches etc.... nearly thought of playing the cancer card, but resisted....and they found someone by Newcastle, so card reserved for brother making me coffee later... ha ha  and then found out why the direct train takes longer than the one changing stations... cos it went round half the bleedin country and across to the east coast via edinburgh! Still, got to wave at Sunny as we went past... looked like a right loony waving out the window at nothing in particular...

Pub last night... played flick the peas at people and if you could get them down people's tops... I lost... never was any good at ball games at school.... My fellow cancer friend won... beginning to see a pattern here... loony, silly, warped and cancer.... hmm is that the missing gene link? Research to be had there I think.....

So... now safely ensconsed in Glasgow with brother. Met the new girlfriend.. told her aobut GC and rolos and she didn't run away so think we are ok so far... actually, she did!!! Will see if the party she has to go to is an excuse or not..... oh dear...

Lunch with the new 'inlaws' tomorrow... better keep off the coke till after that...and maybe stick to fine thanks and not tell them about GC just yet eh?Might get the coke for the plane, just for fun....

Will pop in again soon   to raise the tone if it drops to this shocking leve again, ptherwise, look after yourselves and I'll send you some sillies soon (slept about 3 hours last night so not quite with it tonight)

Annoyed cos I thought i had set up my phone to do this.. but can only do status updates on it and sometimes comment on blogs.. nothing else... on;y reading... What's that? hooray you say? cheeky lot... might not bring the pressies back...

By the way, did you know I was on holiday????

Lots of love

Little My xxxxxxxx

Loony, warped and cancer definatley follow a pattern. i had a good few years practice on the loony and warped bit before the cancer appeared, so it put me in good stead. Perhaps Macmillan could do a publication on the subject to help all the poor devils who aren't loony yet. It could help them get through. Sanity is a dangerous thing.

Bill xxx  

How right you are, Bill. Perhaps it should be for those with a warped sense of humour... you'll be fine, shove over and let the others on.

And can I say, well done for coming out from behind your Men's Stuff Weekly. Please don't hide behind it again...Bill,  Be out and proud, Bill... out and proud I say!

I like the idea of the booklet from Macmillan...  Perhaps this thread could be recommended reading for those who aren't bonkers.... hmmm maybe we need to start a bit gently first with the gentle laughter one, moving onto the joke one and slowly progressing up..... oooh that will give me something to do on the plane.. ha ha Where's my green pen....

And seriously, I think you are right. Us loony, warped lot cope quite well, (if you ignore the odd headspinning psycho moments) and laughter is the best medicine (apart from that morphine stuff they gave me, that was quite cool.. oh and that radiation lark did a bit of good.. oh  and that chemo stuff, well that was rubbish and I'm sticking to laughing next time...  )

Viva La Loony

Little My xxx

ps nice bike.... still looking for a dad if your'e interested... or cool brother if you want. to pretend you are young and groovy still ;o)  and you've got a sausage dog called Horace.. how cool is that? Love to Horace xxx

pps don't know if you know, but I'm on holiday..... its great!

haha enjoy your holiday little my, great sense of humour and wahey to the waving of invisible people but the sentiment is there and thats what matters.  as for the phone and updating yes, thats why i can read on my ipod touch but not reply it just wont let me, the reply box comes up but wont let me type in it arrghh

Bump. dont want this anywhere near page 3 as not sure what our leader would do . xxx

Hi all

As some of you may know, I’ve been feeling very sorry for myself for the last week or so, but when I posted my ‘poor me’ chemo blog, I was very ladylike and didn’t mention some of the other symptoms that have been driving me to distraction.  However, today’s visit to the GP was priceless and I do feel better and can laugh about it.  And if I can laugh about it, I thought you guys might appreciate it too.

Basically, on top of everything else I can thank the chemo for; I ended up with thrush, and not just oral thrush.  I had hoped the tablets my old GP prescribed last week would do the job, because he is a man, and despite my fairly open nature, as I’ve got older, I do find it difficult to talk to men directly, about ‘ladythings’, so didn’t mention my other symptoms.  It’s one thing flashing your bits when they’re where they should be and look like they’re supposed to.  Another thing entirely when everything’s drifted South and sags like badly fitted clothing.  I’d already had to get my boob out last week (yes – just the one) as it had developed a boil!  As I could probably wear them over my shoulders these days, or tuck them into my waistband, I was able to manage this without removing any clothing!

However, now that I’ve been allocated to a doc of the female persuasion, I thought I’d take advantage of that and mention my symptoms when I was there for other stuff today.  The conversation went something like this:  The oral thrush is a lot better; I even managed to eat this morning.  Will the Fluconazole work on the rest of me as well as my mouth? I’m having other symptoms and it doesn’t seem to be clearing up.

Ok she said, I’ll prescribe you pessaries and cream.  That’s good, I said, will the cream work on the bits under my boobs.  “Yes”.  Good.  I’ve also got a rash on my groin and my belly (some of the ladies will know what I’m talking about – the horrible flap of stretched skin that never went away after having babies).  Yes, it’ll work on that too.  I’ve also got a rash behind my ears and also round my neck, can you have a look at it?  Yes, ahh, that’s unusual, but the cream will work on that too.  Do you have athlete’s foot too?  No!  I spend most of my life in flip-flops these days and while it might be a fashion crime, at least it’s saved me some suffering! 

So apparently, between the chemo and all the antibiotics I’m taking, I’ve turned into a walking fungal infection and I have to smear bits of me in Canestan cream several times a day.  I now have a vision of myself as a giant pessary!  Just don’t tell me where to stick myself!

Hi Sunny, so pleased you can now laugh at some of this again, perhaps you turning into one big mushroom, as they are fungi I think, hope you are soon feeling better, thanks for the laughs and a few tears....take care xx

Well Sunny,

Got to say as a mere male I am confused - Thrush huh ? maybe some thing that happens to birds ? Well OK can deal with that , not sure if it helps but sounds like a yeast infection So maybe start  a home brewery, - Thrush dot com ? Thrush Bitter, thrush lite and Thrush Indian pale ailing ?

As for the pessaries - could tell you were to stick them ! But far too polite, Glad you have come out of the dark tunnel for a bit - excuse the phrase xxxx

John xx