with Hello Charlotte31,
Welcome to the Macmillan community, although I'm very sorry you have the need to join.
I'd like to suggest that you repost this in the Hodgkin lymphoma forum which will enable you to connect with others who will have experience of similar issues you can chat for information and mutual support.
I've placed a link below to enable you to join the forum if you wish.

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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