Hi
I am curious to know what you do if you have peripheral neuropathy in the fingers. Mine seems to be getting worse after 6 cycles of ADC targetted therapy. Doctor has prescribed B12 and Pregabalin but neither seem to be doing much. Any other suggestions out there?
Thanks
Hi Snake65
Unfortunately I don’t think there is a lot that can be done. I have some neuropathy in both fingers and feet and my last treatment was in 2023. For me it got worse in the weeks after treatment but then stabilised. I do obvious things like keeping nails short, avoiding extreme heat and cold, keeping moisturised. Mine isn’t painful but the tingling is always there and I find picking up small things difficult.

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I have metastatic Triple Negative Breast Cancer, in remission
Using cold mittens and socks has been really helpful for me. I also wear compression socks and mittens, as I read a separate study suggesting they might have a similar effect. I haven’t developed neuropathy after 10 sessions of paclitaxel. Interestingly, no one in the oncology team – doctors or nurses – mentioned the mittens and socks, and I haven’t noticed any other patients on the chemo floor using them. I think awareness of these is quite low in the UK. Might be worth trying, in case it avoids the neuropathy getting worse. Got mine online. I take a cooler bag with gel ice packs to my chemo sessions and wear them during the infusion.
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