Worried my G3 Triple Neg Breast cancer has spread...

Hi everyone,

I am hopeful for some advice please? I was diagnosed in June 2024 with an early stage (2cm) Grade 3 Triple Negative Ductal Carcinoma, which was successfully treated with chemo (EC first, then Paclitaxil and Carboplatin), wide local exsision and a few lymph nodes to be sure, and finally radiotherapy (10 days). 

I had a complete pathological response with no evidence the cancer ever reached my lymph nodes.I know this means the chances of it spreading are very slim, but I have developed some worrying symptoms that have been steadily increasing over the last few months I'm particular. For further context, I am also diagnosed with Fibromyalgia, so I had been putting it down to that initially.

However, I'm at the point now where it's becoming concerning. It started with the back of my shoulder feeling like it's kind of cramping/aching but I can't stretch it out at all, but that's developed into a nagging achey feeling. Then my pelvis and right hip in particular are becoming increasingly painful with that similar aching. Luckily I mentioned the pain in my shoulder to the breast care nurse at my first annual review/appointment, it just wasn't as uncomfortable as it now. Thankfully they have referred me for a full body bone scan, which is coming up in a couple of weeks. In addition to this I have been having gastrointestinal type pain up under my ribs mainly on the right, but also left side recently. Again, this isn't out of the ordinary as I have IBS, but it is worse than normal. 

However, then reason I have reached out is because in the last couple of weeks I've had 3 episodes of very painful muscle spasms which start on the right side of my chest and then move to my left, when I tried to breath in. Then during the most recent episode while I was holding my side in pain, I felt a small palpable lump on my right flank/side.

So the next day I went to my GP to explain what has been happening and showed them the lump. They weren't concerned and just said it's a fatty lump or small cyst, and that my pain and fatigue/jelly legs is just my fibromyalgia, and finally that the upcoming bone scan will cover everything anyway.

I fully understand that the risk is very low, and I have never questioned my GP before, but understandably I am concerned that waiting might not be the right thing to do. So, would it be appropriate to reach out to the oncologists secretary, or should I contact the Breast Care team, or would the bone scan be the place to start anyway. Unfortunately, fatigue wasn't as bad and the jelly legs feeling I keep getting wasn't happening like this at the time and I hadn't found the lump on my side either, when I had the last appointment with the Breast care nurse. 

I am so sorry for how long this essay turned into, thank you to anyone who has taken the time to read it, I would be extremely grateful for anyone's input. To anyone who may be at the very beginning of their journey, you are and will be stronger than you ever could have imagined!! 

Stay positive,

Pomples