I have no after my treatment

nibs 22 days ago

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I have since then found a lump and unbayyappsy which come back as benign which was a blessing I hatched treat that I'm doing that on myself I have no support I've also got lymphedemia because of lymph nodes that was took out with the radical hysterectomy I have chemo and radiation from March 24 to January 25 and I'm 66 years of age I just feel like I'm doing this alone with no support only my own doctor he was the one that sent for the scout clatterbridge sent me a letter say no sign of the disease even though I've never been in the room with them for over 12 months and never understand they also central letter to my dentist with personal details out a wrong letter that should have gone to the Royal dental hospital all the details about my surgery what they've done what the technowed and what they found it was a normal letter and not even a personal email all their writing to my dentist far was what treatment they suggested next because my teeth are really bad since the treatment and I had really good teeth before it

Hi nibs

I am sorry to hear that you are not getting the support you need after your cancer treatment.

I also had a hysterectomy plus chemotherapy and radiotherapy for endometrial cancer but mine was in 2022. I understand that it can be frustrating to have after effects of the treatment. I do not have lymphoedema but I do have some Late effects from the radiotherapy and some neuropathy from the chemo. I was lucky in the fact that I had check ups every 12 weeks for 2 years post treatment and during this time they did give me a lot of support.

Are you perhaps on patient led follow up if you are not having regular appointments? I know some hospitals do this for some ladies rather than face to face appointments. It can also depend on stage and grade etc. Being on patient led follow up means I can be seen at any time for the next couple of years by contacting my CNS directly. Some hospitals also have Life after cancer courses and counselling available if you feel it may help.

I am sorry to hear of the problems that treatment has caused you with your teeth. Mine are definitely more sensitive post chemo than they were but did start to settle a bit as I recovered and saw my dentist and hygienist. I hope that the dental hospital can help.

it sounds like you have had a challenging time and if it would help then do please give the Support Line a call. They are there from 8am-8pm everyday. They may also be able to look to see if there is some support close to you.

Jane

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm