I am totally alone, mainly bedbound. Diagnosed with breast cancer in 2005 (it wa already in my lymph-nodess and on the move), a surgeon tole me that with 'radical surgery' he could keep me alive til 2008 - having had so many friends and relatives spend their last years in and out of surgery, chemo- and radio-therapy and then dying, I told the surgeon (reasonably politely!) where to stick his surgery, and have had no medical intervention whatsoever, and am still here 21 tears later .... NO, my cancer is NOT in remission, it is all over my skeleton and I am really weak now, mopping blood from the bleeding wound etc (yeauch!! )
Downside is that all of my so-called 'friends' have abandoned me, ,branding me a fantasist 'making up having cancer' (do they want a photo?)
Have one daughter who is my only known living relative - she took the huff over something stupid and now refuses all contact. - now i cannot even write a legal Will unless I pay a fortune to some lawyer (I am not rich, the lawyer-cost would likely outweigh whatever might be left!!) .... I rely heavily on the Samaritans (serous)and Silverline (mainly for a lighter approach) ... both organizations say 'it's a joy to talk with you, call back any time' ... ermmm maybe I come across more light-hearted thn I feel ... !!!!
Despite this mainly-moany intro, I have a dark sense of humour and like a laugh.... I am doing my best to support an 'unwilling diabetic', writing him LOTS of healthier-type recipes, and alsoa young drug addict who is a total nightmare (I have never met either of them in person).
There must be more of you out there who also have refused treatment and have similar experience to mine, outliving predictions and being falsely judged...? ... it would be good to share a wry giggle or two ....
Hi WillowKa8e3d4 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community, and it sounds like you've been through a great deal so it must be hard to feel abandoned by everyone you're close to.
The online community is divided into different support groups so I'm going to recommend that you join the living with incurable cancer group where you'll find others who have outlived their prognosis, or sell by date as they like to call it.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis into your profile as it really helps others when replying to you. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
