Hello, I’m posting on behalf of my mum and would really appreciate hearing from anyone with similar experience.
Her diagnosis and treatment were significantly delayed, and by the time everything was confirmed her condition had deteriorated badly. We feel she was let down by those delays.
She is currently bedbound, which is why her oncologist is refusing immunotherapy. However, she is eating well, mentally alert, and engaging, and her being bedbound feels related to disease progression rather than overall frailty.
Has anyone had experience of receiving immunotherapy — or a loved one receiving it — while bedbound or with a poor performance status? Or of an initial refusal being reconsidered?
