Hello, I’m posting on behalf of my mum and would really appreciate hearing from anyone with similar experience.
Her diagnosis and treatment were significantly delayed, and by the time everything was confirmed her condition had deteriorated badly. We feel she was let down by those delays.
She is currently bedbound, which is why her oncologist is refusing immunotherapy. However, she is eating well, mentally alert, and engaging, and her being bedbound feels related to disease progression rather than overall frailty.
Has anyone had experience of receiving immunotherapy — or a loved one receiving it — while bedbound or with a poor performance status? Or of an initial refusal being reconsidered?
Hello Stargazer1
I am Brian one of the Community Champions here at Macmillan. I have just noticed your post has gone unanswered. I have a couple of suggestions for you:
* You don't say which cancer your mum has. The community is divided up into cancer specific groups. If you let me know the type of cancer mum has I can direct you to that group. There may well be someone with experience there who can answer your question.
* If you disagree with mum's oncologist - it is possible to request a second opinion and here's the information you need:
Getting-a-second-opinion-about-your-care.
I hope the above helps.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
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