Hi
i haven’t been on here for a while but I’m needing support.
My husband was diagnosed with liposarcoma 2 1/2 yrs ago. It was inoperable and his prognosis was 2 yrs. His mental attitude has been great throughout. Sadly the chemo ( doxyrubecin) has caused acute heart failure so he is practically bed bound now , with no energy and no appetite.
I’m a trained nurse but I find it so difficult. He has always been the stoic figure who takes things on the chin but this heart condition is a game changer. Nothing prepared us for this happening. Its as though the cancer is secondary now .
Sleep deprivation is constant for both of us. Him because of heart failure and me because I’m worried to sleep incase he needs me.
I have support but still feel very lonely. Trying to stay brave for my husband and my boys is hard.
Just needed to speak …….
Hi Jmd25
I’m Anne, one of the Community Champions here on the Online Community, and I'm sorry to read how much you and your husband are going through.
As you know, the online community is divided into different support groups so I'm going to recommend that you also post this in the carers only group, which I can see you've joined, as you'll then connect directly with others who are in a similar position.
Sending virtual ((hugs))
"Never regret a day in your life, good days give you happiness, bad days give you experience"
