2 week cancer pathway

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On December 2nd I has my regular diabetes review. Because I wasn't my usmy chest sounds werebual optimistic self, the nurse referred me to a GP as a matter of urgency. The doc referred  me for a chest xray, even though the chest sounds we're clear & heart sounds normal & chest sounds clear. This triggered a CT scan the following day and a consultant  appointment on Tuesday. He said there's a mess of rubbish near one of my lungs, so I'm having an EBUS biopsy tomorrow, brain scan on Monday & a PET scan on Xmas eve.

I'm terrified and finding it difficult to stay strong while we don't have any answers. 

Sorry for offloading, but I had nowhere else to do it!

  • Sending hugs keep in touch Sparkling heart 

  • Happy Christmas everyone! Yesterday it was confirmed I have cancer, but they think it is treatable. Further tests are being carried out on the biopsy to establish if it's lung or breast (from 20 years ago) & I will find out next Wednesday. At least I now have a rough idea what 2026 looks like!

    Oddly enough, I found a white feather on the way into the appointment & another on the way out!

  • Two angles looking after you .. hope you are having a good day enjoy and keep in touch sending you hugs 

  • Update from yesterday's appointment - it is lung cancer & I'm being referred to a radiotherapy/chemo specialist who will decide on the best course of treatment. It may be that I'm not fit enough to cope with chemo. I'm now on a months course of steroids to build me up (just call me Buttercup ;) ). Just waiting for a phone call from them now.

  • Not the news you would off wonted to hear.bit at least you are on a treatment plan now . hopefully you will pick up and be able to cope with chemotherapy.keep in touch sending hugs 

  • So, I'm now feeling lost & in limbo. I've had no call following on from NYE, and don't know who to reach out to to chase this up. I feel like I've had a 2 week sprint to the edge of a cliff and have now fallen off without a parachute. I'm getting 3-4 hours sleep per night and can eat very little. As for giving up smoking, not even going there! Just been reading through the bunf handed out which promised psychological help, do they contact me or do I chase them.

  • Hello  

    I am Brian one of the Community Champions here on the online Community. I am so sorry to read of your journey so far so here's a little bit of information for you:

    * We do have a dedicated lung cancer group. You may wis to join this group as you can share your journey with others on the same or similar journey. Here's the link you need

    Lung cancer forum 

    * Sadly in this day and age on a cancer journey you need to be "proactive" almost to the point of being your own booking clerk. You need to contact your team and ask them just where you are on the Cancer Pathway (62 days to start of treatment).

    * Our Support Line on 0808 808 00 00 (8am to 8pm 7 days a week) is there for you - they will be able to give you helps and advice regarding the lack of sleep - and anything else you need to ask.

    I hope the above helps - if I can do anything else for you please do let me know.

    I wish you well moving forward.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • So having gone 11 days with no contact from the treatment team, I had a call yesterday to go back to respiratory this morning. Cue mini breakdown! Went this morning to find that chemo is being organised first & Dr Webster wanted to tell us himself! If I've not heard by the end of the week, I should contact the nurses to chase up.

    Then at 2:45, Christies ring booking my initial consultation for tomorrow at 9:30. Looks like I'm going bald again Joy

  • Hello  

    Thank you very much for the update - movement with a cancer diagnosis is always a good sign and like me you look at your journey with a little bit of humour (it does help to get through things).

    The good news is like me you are under Christies (the 4th best cancer hospital in the world) and I have found them to be amazing all the way through my journey, indeed I am in there tomorrow for a Consultants meeting.

    I will give you the links for 2 of our groups you may wish to join for help and support:

    Lung cancer forum 

    Chemotherapy forum 

    Just click on the links I have provided and they will take you there.

    I have managed to "dodge" chemotherapy so far but my hair is either a Number 1 or 2 so there's nowt to lose, however do remember Macmillan have a wig service.

    Wigs-for-cancer-treatment.

    Keep the positive attitude, do let us know how you get on and if I can do anything for you don't hesitate to give me a shout.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • I start chemo/immunotherapy on Monday! We're so relieved to have a plan of action. I know it's likely to make me feel pretty crap, so have treated myself to a fleecy blanket and pillows, so I don't have to cart stuff up and down stairs (more honestly, ask hubby to do this :) )

    Am also organising a chemo bag with treats and drinks.