Hi there. My name is Fran from Ireland. I recently have had a recurrence of ovarian cancer stage 4 clear cell after a wonderful cancer free time of 12 years. I know I’ve been very lucky
on chemo at the moment. I was wondering if any of you ladies have been affected by violent shaking in the legs which if I don’t sit down will lead to me falling. I have had all ct scans and mris and pet scans to no avail. My team is totally baffled. My scenario is as follows -
This happens spontaneously particularly when I’m away from the house. When I get up from a sitting after about 4 steps my legs start shaking increasing in intensity until I sit when goes away very quickly
this has me afraid to go out. Please help. Fran
Hi Fran/ Ireland and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community, and although I haven't had the symptoms you're describing, it sounds pretty stressful.
The online community is divided into different support groups so I'm going to recommend that you post this question in the ovarian cancer group, which I can see you've joined, as you'll then connect directly with others who have the same type of cancer as you.
You can start a new post there in the same way as you did here and also join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
