Struggling with the wait for diagnosis

Hi Leeds529f12 

Welcome to our community, I hope you find it both informative and supportive.

I think just about everyone on here will remember when they first face the word cancer, They will also remember the worry and how much things seemed to be a bit better when they got more information about what they are facing.

There is some really good information about bowel cancer and the processes you might be facing on the main site and you might like to look at and perhaps introduce yourself in our Bowel (colon and rectal) cancer forum 

My wife's cancer is rather different but is currently stable and has been that way for about 10 years now, she never wanted a prognosis and I really struggled with that especially as our son was quite young when she was first diagnosed. He is 21 now. 

<<hugs>>

Steve

I was exactly the same, I had gallstones and had gone into speak to the consultant regarding gallbladder removal, and I discussed my symptoms with him (my GP had told me they were all related to gallstones) the consultant disagreed and sent me home with a FIT test just to check, and then 2 weeks later I was told after a colonoscopy that I had a suspicious lesion and to prepare that it could be cancer. I didn’t deal with the next 3 weeks well, I asked for diazepam from the GP to help cope temporarily, I did calm down a little once I had met the surgeon and knew the plan of action (that was on the 25th November) and now I’m just waiting for surgery. I’ve since learnt to cope using tactics, breathing exercises, going a walk, writing it down. I have horses so going out and spending time with them is the biggest and best therapy for me. I like you, have two young children. I still have days that are worse than others, but I know now how to help those moments.  I hope this helps. 

don’t be scared to reach out to macmillian. 

I hope you don't have too long to wait for surgery. I had some diazepam and later on something stronger for some treatment appointments and both GP and consultant were very supportive and encouraging about prescribing and told me asking for help was being proactive in taking care of myself and my mental health. Consultant said they suspected some patients refused care or didn't come forward for tests when with a simple prescription they could have. I found being outside a great help too. It sort of re-set my head! 

Sending best wishes. 

The waiting is the hardest thing to do.test after test scan goes on for months until they know and know how they are going forward .i agree about being in limbo your head is all over the place .all i can say is stay strong for your self and your babys 

Thank you all for the taking the time to reply to my post. I had my consultant appointment yesterday and it’s the best outcome I could have hoped for. Biopsies have confirmed it is cancer but it doesn’t look to have spread outside of the colon. I’m due to have surgery in the new year to remove about a 3rd of my large intestine and my appendix.

not wrapped my head around the surgery yet, just so relieved that it doesn’t look to have spread!

Good news for you . Christmas is going to be that much better for you now you know how things stand. . sending lots of hugs 

Sending you hugs, and wishing you all the best for your surgery. xx

I’m glad you are feeling more positive and got positive news. I’m waiting for surgery and have been told it will be January so we will be on a similar timeline to each other. 

Hope you enjoy Christmas as much as you can  

I have also just been diagnosed with breast cancer & awaiting results from biopsies  to stage and decide on treatment plan. One minute I am very positive next I am convinced it's spread.  It's horrible. I hope you get answers soon..wishing you all the very best and hoping a plan can be formulated very soon

Feeling are all over the place for you at the moment .. hopefully things will become better for you to understand . sending you lots of hugs stay in touch