Struggling with the wait for diagnosis

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I’m 41, reasonably fit and feel pretty healthy, I went to the doctors at end of Oct with persistent bloating that had recently started and just felt a bit out of the ordinary for me. I was asked to take a FIT test but the Doctor said it was nothing to worry about, next thing I know I’m getting a call from the Colorectal unit at my local hospital to say they had found blood in my sample (not noticed anything) and I needed any urgent colonoscopy.

I had that 3 weeks ago where they found a tumour in my large intestine. They took biopsies but I was advised at the appointment it was cancer. I’ve since had a CT scan and today I have been given my  first appointment with a Consultant this week to discuss what they’ve have found.

I’m finding the wait to find out what stage I have and if it’s anywhere else in my body almost unbearable. I have 2 young children and the thought of leaving them motherless is just too much to comprehend.

Every twinge I have I think the cancer has spread elsewhere, not knowing if there is a straightforward treatment plan ahead or if this is my last Christmas is really affecting my mental wellbeing. 
How has everyone else coped with this wait? Being told you have cancer is devastating but no-one prepares you for this unbearable limbo of not knowing what stage of the disease you are facing.

Apologies for the rambling, this is all so raw.

  • Hi  

    Welcome to our community, I hope you find it both informative and supportive.

    I think just about everyone on here will remember when they first face the word cancer, They will also remember the worry and how much things seemed to be a bit better when they got more information about what they are facing.

    There is some really good information about bowel cancer and the processes you might be facing on the main site and you might like to look at and perhaps introduce yourself in our Bowel (colon and rectal) cancer forum 

    My wife's cancer is rather different but is currently stable and has been that way for about 10 years now, she never wanted a prognosis and I really struggled with that especially as our son was quite young when she was first diagnosed. He is 21 now. 

    <<hugs>>

    Steve

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