Hi - the lady on the helpline suggested I post a question here to ask what others are doing about this, which I guess must be a common occurrence. It’s about socialising over Christmas with family members who are out in the workplace and/or attending primary school while I’m at my most vulnerable.
Christmas Day and other planned events fall due on days when I will be at my most fatigued and most vulnerable at the end of my cycle (before the 7-day break), so I am quite concerned about this. I haven’t been in the situation before. I need to check if the school has any vaccination programme planned before Xmas, and I will ask them to let me know if there’s any flu or tummy bug going around before we get together. But I’m wondering whether I should be taking any measures as per COVID times, and maybe restrict my time spent with people. One event we’re planning to attend at the school will be indoors and most probably quite crowded. I prefer not to pick up any bugs or viruses if I can help it, as I feel poorly enough already on a “good” day.
Can anyone share their thoughts or experience, please?
Many thanks!
Hi NinaMC0bfab6 and welcome to Macmillan
It’s a very good question at this time of year when people are socialising more than usual.
You haven’t said which cancer you are having the treatment for, and as Capecitabine can be used for various cancers, it might be helpful while you wait for replies in this general chat group to join one or more of the cancer specific groups. There you will be able to connect with others who have the same cancer and find out how they are dealing with this issue while on the same type of chemo.
If you’d like to share your type of cancer, I can link you to a cancer specific support group here which will increase the amount of members who will see your post.
Sarah xx
Thank you for your response. I didn’t think the type of cancer would matter as it’s more to do with being immunocompromised. But it is metastatic breast cancer. Happy to post the question elsewhere. Thank you for your help.
Hi NinaMC0bfab6
I’ll give you the links here to breast cancer groups if you do want to try posting your question in either of these to see if you can get some more replies.
Sarah xx
Hi Nina, I have metastatic breast cancer and take ribociclib for 3 weeks and 1 week break and denosumab 4 weekly. My neutrophils are quite low all the time so treatment can get delayed. I am not taking any COVID precautions I did try and stay away and not hug my family/friends but it made me feel isolated. We have to live with this so I am not taking any precautions. Obviously my friends and family keep away if they have colds, coughs etc. I just want to live as normally as possible. I am on the Living with incurable cancer-patients only forum on here. Most of us on there are the same just trying to get on with things. You have to do what feels comfortable for you. Sending you hugs.
Lee x
Hi Lee, Thank you so much for your reply. That is really useful and I’m pleased to hear your perspective. I too have Denosumab. I have ended up being called into the hospital before, due to a raised temperature, while they do tests and satisfy themselves that I can go home again. It’s very disruptive and time-consuming, and I would like to avoid this in future if I can.
Also don’t want to cause too much disruption for others either, as everyone wants to make the most of their special times together. Trying to find that balance.
Thanks again xx
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