What do you wish you had known?

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In a new Community News Blog mini-series we are asking 'what do you wish you had known'?

So far, we have started threads with hints and tips from members around radiotherapy and chemotherapy. If you'd like to get involved, you can find those conversations here:

Other subjects may include:

  • Diagnosis
  • Cancer surgery
  • Stoma
  • What you wish family and friends had said

Please do let us know if you have any feedback on the series so far, or if there are any other subjects you would like us to feature. 

There are always opportunities to share your experience more widely - just get in touch with us below or by email at community@macmillan.org.uk if you would like to know more. 

  • There's a couple of things I would have liked to have known.                                                                            Everything they knew about  my diagnosis, within a reasonable space of time, and not having to wait so long for It, information which would have had a bearing on decisions I made, especially on treatment.                    How important it is to find an oncologist you can trust, and believe their doing all they can for you, and will share information your other consultants.                          Finally something I'm not sure is helpful or not, knowing, where your cancer journey is taking you, I've always known I'm not curable, but knowing how that end is very likely to be, is it a good thing or not?,                I hope I don't sound miserable, as I'm not, life though different is good, and hopefully for some time yet, I'm lucky to have a wonderful partner and family, and good friends, a few I first met on here. So that's another thing I wish I'd know about, The Macmillan online community, thanks guys xx

  • I wish I had been told up front that you can apply for a medical exmeption card to get free prescriptions.

    I only found this out myself after leaving hospital after surgery with a big bag of meds containing an invoice to pay. Whilst researching "how do I pay?", I found out that I could claim free prescriptions. Fortunately I was then able to get that sorted before then settling the invoice - otherwise I woud have paid out 50-odd quid.

  • I am to start my chemotherapy after 3 days

    for my current stage, after having the debulking surgery for taking out all the suspicious organs and tissues, I used to be worried after losing my mental health after that major surgery 

    Ladies lose their minds when they lose their ovaries, that was the warning I read from both professional and lay people talk on the internet

    my case could not stand treatment delay

    I went on with the medical instructions 

    Fearing to lose myself..

    After the surgery, I am still reading more about the issue, I found that they linked a woman’s value with her ability to bring kids. That’s where they try to restrict girls power!

    and there is where they brought the word hysteria

    Nonsense academicians!

    patient people suffer from there diseases, why do they threat them about treatment not proven consequences?

    My mind is in my head

    My surgical wound is still minimally open. I am tired, suffering from pain 

    But my mentality is not affected 

    I am still me 

    up to now..