Hi everyone I’m new to the group so I’m sorry if I’m posting this in the wrong place.
My GP thinks I might have Thrombocytosis (he did mention Essential Thrombocytosis at one point).
I’ve got a Clinical Haematology hospital appointment in November. I’m just after some advice on what is likely to happen at this appointment eg will it be just a chat or will they likely do some tests etc.
I’m very good at saying Im alright while actually Im not. At the moment Im anxious about the appointment and the whole thing, I keep thinking that it’s going to be bad news but I think that’s because I’m over thinking the whole thing.
I’m feeling tired most of the time, most food makes me feel ill (im not normally a fussy eater) and I feel ill nothing really hurts or aches I just don’t feel 100%.
sorry if non of that makes sense.
Hi Sarah19909dcd6a and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
The online community is divided into different support groups so I'm going to recommend that you join the myelodysplasia and myeloproliferative neoplasms group as this group also covers essential thrombocytosis. Joining and posting in this group will connect you directly with others who will be able to share their experiences of what to expect at the appointment.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your symptoms and journey so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
