Hi folks I have stage four terminal secondry Anal Cancer in my liver , lungs , and a couple of stomach nodes, ive been really blessed that I'm not in a lot of pain and my mobility is OK, I'm getting good strong support from family and a little amount of friends which is always good, but mentally inside myself I'm a total wreck, I'm super emotional at a drop of a hat i find myself sitting on the edge of my bed while my wife is asleep next to bubbling like a baby trying not to wake her and my 9 year old son whom I adore in the other room. I feel like I'm keeping a secret from my son and its chewing me up inside, he knows I have cancer but not terminal and its that what is eroding me inside out, eventually when I start to go really downhill and he realises that I'm not going to get better I will have to break is little heart. Scenarios run wildly through my mind of the emotional mess il leave behind and the sorrow and anger that will come from our son because I'm gone.i cry almost everyday now not just about leaving my fantastic wife and son but because of the anger that my parents will have who are living in total denial about my terminal diagnosis and my only brother who lives on the other side of the planet, I feel so guilty sometimes like I'm going to cause the most horrible crime because ive had two rounds of chemotherapy which reacted ok to the small tumours but the side effects were horrendous, so ive vowed to my family I'd rather not be unwell whilst receiving it so when I get offered it after my CT scan next week I'm going to refuse it. So as you can tell my head is scrambled my emotions are shot and I'm crying all the time. Sorry for ranting.
Hi Cally, you rant all you like, I know your not new to the community, but a very warm welcome to our little thread, and I'm so very sorry to read your story my friend, but it's understandable, having been through what you have, your going to be emotional, how could you not be, and I've never known anyone "catch" cancer deliberately, so never blame yourself for having it, as it's not your fault. PS I too am T4, prostate cancer everywhere, with a wonderful partner as well as a very close relationship with the kids mum, 4 wonderful kids, and 12 adorable grandkids all of whom I love to bits, and just like you, get emotional, especially over the conundrum of what and who to tell, a very personal decision, for you and those closest to you, I do believe children are more astute than we believe, and more resilient. Well my friend, as someone who's unable have chemotherapy or surgery, I can't tell you to have chemo or not, but maybe now, as you could prepare better, and your team could make alterations to your chemo, maybe a revisit to your decision could be considered, absolutely your decision my friend, but regret is a terrible thing.I am also on my last treatment, which is failing.
Eddie
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