I was diagnosed with Medullary Thyroid Cancer with RET on August 16, 2025.
I just started taking trial drug Selpercatinib as the tumor in my neck is very large and has displaced my trachea.
Also MTC has metastasized into my lymph nodes. Treating Oncologist says selpercatinib may shrink my tumor
and hold in check the RET mutation. I decided to take the trial drug instead of surgery right away in the hopes
that the tumor may shrink and make the surgery more manageable.
Any thoughts?
Hi 55 year old Canadian75112c and a very warm welcome to the Macmillan Community but sorry to hear about your diagnosis.
Navigating a cancer journey can be such a stressful and challenging time but getting support from people who have walked or are walking the ‘exact same' journey can help a lot. (I have a completely different cancer).
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated Thyroid Cancer Support Group.
This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group please click on the link below…….
……. and once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
Do get back to me if you need further help navigating the community.
