azacitidine

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Hi, my name is Hugh; and my wife is Patricia, and she has been diagnosed with M D S and is starting Azacitidine, she would like to know other peoples experiences with this treatment. she has already had a stay in hospital because of high temp and suspected infection and a course of anti-biotic. she would like to know if this is normal whilst being treated with azacitidine  many thanks in advance.  

  • Hi  and welcome to the community.

    I am Mike and I help out around our blood cancer groups.

    The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you look to join and post in our dedicated…….

    MDS/MPN/ET/PV/myelofibrosis (MF)

    ……. support group.

    This group is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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